Data Dictionary: Pancreatic cancer - DPCA

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Patient

CATEGORY	LABEL / DESCRIPTION	VARIABLE NAME	TYPE	LENGTH	FORMAT	VARIABLE REQUIRED	OPTION CHOICE REQUIRED	OPTIONSET	DEFAULT VALUE	VISIBLE	CONDITION	CALCULATION	HELP TEXT
	SECTION	Identification
Patient identification	Health institution	id	integer	4		Yes	Yes	1002	organisationId()	read-only
Patient identification	Unique Patient Number	upn	text (encrypted in Survey)	15		Yes							The hospital patient number (UPN) as registered in the electronic patient record (EPR) of the respective hospital.
Patient identification	Citizen Service Number country	land	text	10		Yes	Yes	countries					Choose here the country where the patient's identification number was issued. If nationality is other than Dutch, German, Belgian, or Swedish, choose 'Unknown'.
Patient identification	Citizen Service Number	idcode	text (encrypted in Survey)	15		Yes							"Netherlands: Citizen Service Number: must consist of 9 digits and meet the eleven-test.
Germany: Ausweisnummer: must comply with the rules applicable to a German ausweisnummer.
Belgium: National Register Number: consists of 11 digits, composed of the birth date (year, month, day), series number (3 digits), and control number (2 digits).
Sweden: Personal Number: consists of 10 digits, composed of the birth date (year, month, day), a dash or plus sign, a series number (3 digits), and a control number (1 digit).
Other or Unknown: if Other or Unknown, enter the hospital number followed by the patient number (UPN) as registered in the electronic patient record (EPR) of the respective hospital."
Name data	Prefixes	tussen	text (encrypted in Survey)	8									Prefixes belonging to the last name (birth name) as stated on the patient's identity documents.
Name data	Last Name	naam	text (encrypted in Survey)	40		Yes							Last name (birth name) as stated on the patient's identity documents.
Personal data	Birth Date	gebdat	date	10	yyyy-mm-dd	Yes							Birth date of the patient displayed in the Dutch date format. Example: 22-04-1999.
Personal data	Gender	geslacht	integer	1		Yes	Yes	500					Gender as listed in the municipal basic administration (GBA).
Personal data	Country (Residence Address)	land-woon	integer	4		Yes	Yes	34	6030
Personal data	Postal Code	pcode	text (encrypted in Survey)	7		Yes					[land-woon]==6030		Postal code at the time of first contact. Only fill in for a Dutch residential address! Preferably use the postal code from the Postal Code Table (OID: 2.16.840.1.113883.2.4.4.15). Dutch postal codes consist of 4 digits and two capital letters. Example: 1234AB.
Personal data	Date of Death (if applicable)	datovl	date	10	yyyy-mm-dd								The date on which the patient died, in the Dutch date format. Example: 22-04-1999.
	SECTION	Comorbidities
Comorbidities	Click yes, to carry over previously registered comorbidities into the record you are about to add.	comcopy	integer	1			Yes	524			plugin('IknlCounter','comorbidities') >= 1
	"Comorbidities
Click on add new record when:
- You are registering the patient's comorbidity status for the first time;
- The patient's comorbidities have changed;
- The comorbidities were previously registered (> 1 year) and have not changed (in this case, you can use the above button to carry over previously registered values).
- The patient is being registered due to a suspicion of OR proven pancreatic/periampullary tumor or premalignant cyst OR
- The patient is being registered due to chronic pancreatitis requiring pancreatic head or tail resection
Click on the existing record when:
- You want to correct a mistakenly entered value.
Do not add a record:
- If the patient was only discussed in the MDT"	comorbidities	dataset
	SECTION	Procedures
	"Procedures.
It is possible to register multiple procedures per patient if applicable. If you want to register the first procedure or a new procedure for this patient, click on “add”. If you want to add information to a procedure that was already created for this patient, click on the horizontal bar. If you want to create a new patient, click back to ""home"" at the top left."	procedure	dataset
	SECTION	COVID-19 module									false
	"This generic COVID-19 module has been added to the DICA registrations 2020 due to the impact the corona crisis has had on the quality of care, as measured in the DICA registrations. With the data in this module, your indicator outcomes for this period can be better interpreted and possibly adjusted for the effects of SARS-CoV-2 infections of your patients and the measures that had to be taken in your hospital during the pandemic.
This module is aligned with previous data collections of COVID-19 patients in hospitals by the NICE Foundation. By requesting an export of your own data from NICE and supplying it to MRDM, this data can be reused. A large part of the generic module can therefore be pre-filled. Contact the MRDM service desk for more information about this supply (servicedesk@mrdm.nl).
If you are participating in the COVIDSURG II snapshot study for this registration, first fill in the generic module here and then you can complete the research module by answering the last question: 'Are you participating in the COVIDSURG-2 Snapshot?' with 'Yes' and the questions will then become visible. For information or participation, please contact covidsurg@dica.nl."	covid19	dataset							not visible due to section condition	FALSE
	SECTION	Pathology variables from PALGA
	As part of the PALGA link, pathology variables from the PALGA Foundation are automatically and structuredly included in the registration. For this purpose, the PALGA pathology module has been added to the registration for which no additional data needs to be supplied	palga-pathology	dataset							read-only