Database: German Childhood Cancer Registry (DKKR) (Germany): Difference between revisions

Revision as of 12:15, 15 May 2024

Go back to Germany page

Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.

Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.

Type of information: Incidence, survival and mortality of children with cancer by age, sex and cancer type. Click here to learn more.

Source of Information: Information about GPOH study patients is sent to the DKKR. Click here to learn more.

Data level: national level.

Number of records: Covers more than 95% of the population.

Date range: 1980 onwards.

Cancer areas of interest: C15-C26: Digestive system cancers; C30-C39: Lung/chest cancers; C45-C49: Soft tissue cancer; C50: Breast cancer; C60-C63: Male genitalia cancer; C69-C72: Eye and brain cancer C81-C96: Cancers of the blood and immune system. Click here to learn more.

Data access: partially publicly available. Click here to access. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

@@ Line 6: / Line 6: @@
 '''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]].
-'''Type of information:''' Incidence, survival and mortality of children with cancer by age, sex and cancer type.
+'''Type of information:''' Incidence, survival and mortality of children with cancer by age, sex and cancer type. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more].
 '''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more].