Database: German Childhood Cancer Registry (DKKR) (Germany): Difference between revisions
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'''Type of database:''' [[databaseType::registry]]. | |||
'''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer. | '''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer. | ||
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'''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]]. | '''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]]. | ||
'''Type of information:''' Incidence, survival and mortality of children with cancer by age, sex and cancer type. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. | '''Type of information:''' [[databaseStructure::longitudinal]]. A data dictionary was not found. | ||
'''Available type of information:''' Incidence, survival and mortality of children with cancer by age, sex and cancer type. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. | |||
'''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more]. | '''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more]. | ||
Revision as of 13:14, 6 June 2024
Go back to Germany page
Type of database: registry.
Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.
Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.
Type of information: longitudinal. A data dictionary was not found.
Available type of information: Incidence, survival and mortality of children with cancer by age, sex and cancer type. Click here to learn more.
Source of Information: Information about GPOH study patients is sent to the DKKR. Click here to learn more.
Data level: national level.
Number of records: Covers more than 95% of the population.
Date range: 1980 onwards.
Cancer areas of interest: C15-C26: Digestive system cancers; C30-C39: Lung/chest cancers; C45-C49: Soft tissue cancer; C50: Breast cancer; C60-C63: Male genitalia cancer; C69-C72: Eye and brain cancer C81-C96: Cancers of the blood and immune system. Click here to learn more.
Data access: partially publicly available. Click here to access. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
