Data dictionary - Netherlands Cancer Registry (NKR): Difference between revisions

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There are different types of variables available according to type of tumor and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumor, visit the data source.
There are different types of variables available according to type of tumor and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumor, visit the data source.


{| class="wikitable"
=== Patient Records ===
! Patient records
|-
| Date of birth
|-
| Sex
|-
| Place/country of birth
|-
| Date of death
|-
| Patient number in the institution
|}


{| class="wikitable"
{| class="wikitable"
! Tumor data
|-
| Date of diagnosis
|-
| Basis for diagnosis
|-
|-
| Topography
! Date of birth
|-
|-
| Morphology (WHO classification and FNCLCC grade)
! Age at diagnosis
|-
|-
| TNM stage (clinical and post-surgical)
! Sex
|-
|-
| Additional tumor features (Behaviour, Localization, Size, Multifocality, Palpability)
! Country of birth
|-
|-
| Topography synchronous metastases
! Date of death
|-
|-
| Molecular abnormalities in the tumor
! Vital status with date
|-
|-
| Lymph nodes examination (Number and status)
! Patient number in the institution
|-
|-
| Receptors status
! Menopausal status at diagnosis
|-
|-
| Images for diagnosis
! Postcode figures
|-
| Degree of differentiation
|-
| Laboratory studies
|-
| Pathologic data biopsy
|}
|}


=== Tumor Data ===
{| class="wikitable"
{| class="wikitable"
! Treatment details
! Tumor Data
|-
|-
| Surgical procedure (type, date of occurrence, date of discharge)
| Diagnosis date
|-
|-
| Lymph node dissection (type, date of occurrence, date of discharge)
| Basis for diagnosis
|-
| Reconstructive surgery (type, date of occurrence, date of discharge)
|-
| Radiotherapy (type, start date, stop date, dosage)
|-
| Chemotherapy (type, start date, stop date, scheme)
|-
| Hormonal therapy (type, start date, stop date)
|-
| Target therapy (type, start date, stop date)
|-
| Immunotherapy (type, start date, stop date)
|-
| Complication during/after treatments (type, reintervention)
|-
| Metastasectomy (yes/no)
|-
| Reason for not performing an specific treatment
|-
| Resection margins
|-
| Other treatments (type, start date, stop date)
|}
 
{| class="wikitable"
! Follow-up data
|-
| Recurrence within 5 years of diagnosis
|-
| Relapses within 10 years of diagnosis
|-
| Follow up type (Local/regional recurrence)
|-
| Date of follow up
|-
|-
| Basis for diagnosis of follow up
| Topography (incl. sublocalization/lateralization)
|-
|-
| Pathological tumor size on follow up
| Morphology (incl. behavior/degree of differentiation)
|-
|-
| Localization of follow-up recurrence
| Topography metastasis (incl. sublocalization)
|-
|-
| Lymph node follow-up examination (number examined, status)
| Clinical TNM stage
|-
|-
| Metastasis follow-up (number, type, basis for diagnosis, topography)
| Pathological TNM stage
|-
|-
| Treatment follow-up (type and date)
| Multifocality tumor
|-
|-
| Progression (date, method of determination)
| Pathological size of the tumor (mm)
|-
|-
| Lab results/Receptors status related to recurrence/metastasis
| Estrogen receptor status
|}
 
{| class="wikitable"
! Risk Factors
|-
|-
| Comorbidity
| Estrogen receptor value
|-
|-
| Rookstatus
| Progesterone receptor status
|-
| Surgery history
|-
| Medical history of malignancy (type and date)
|-
| Family's medical history of malignancy (type and date)
|-
| Weight
|-
| Length
|-
| ASA-score
|-
| Alcohol use
|-
| Performance-score
|}
 
{| class="wikitable"
! Process data
|-
|-
| Type of diagnostic image performed
| Value of progesterone receptor
|-
|-
| Reason of diagnosis
| HER2 status
|-
|-
| Gene mutation research conducted
| Technique used for HER2 determination
|-
|-
| Date of gene mutation research
| Number of regional lymph nodes examined
|-
|-
| Hospital gene mutation research
| Number of positive regional lymph nodes
|-
|-
| Type, Date and Results of performed procedures (MRI, biopsies, sentinel lymph node examination, exploratory surgery, etc)
| Presence of DCIS component next to invasive tumor
|-
|-
| Date and type of consultation with specialists and radiotherapists
| BI-RADS classification
|-
|-
| Participation in clinical scientific research
| Tumor palpability
|-
|-
| Hospital location of diagnosis, treatment and imaging
| Breast print rash
|-
|-
| Tumor limits
| Result of oncotype DX
|}
|}

Revision as of 19:27, 8 June 2024

Go back to Database: Netherlands Cancer Registry (NKR) (The Netherlands) page.

Source: Click here to learn more.

There are different types of variables available according to type of tumor and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumor, visit the data source.

Patient Records

Date of birth
Age at diagnosis
Sex
Country of birth
Date of death
Vital status with date
Patient number in the institution
Menopausal status at diagnosis
Postcode figures

Tumor Data

Tumor Data
Diagnosis date
Basis for diagnosis
Topography (incl. sublocalization/lateralization)
Morphology (incl. behavior/degree of differentiation)
Topography metastasis (incl. sublocalization)
Clinical TNM stage
Pathological TNM stage
Multifocality tumor
Pathological size of the tumor (mm)
Estrogen receptor status
Estrogen receptor value
Progesterone receptor status
Value of progesterone receptor
HER2 status
Technique used for HER2 determination
Number of regional lymph nodes examined
Number of positive regional lymph nodes
Presence of DCIS component next to invasive tumor
BI-RADS classification
Tumor palpability
Breast print rash
Result of oncotype DX
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