Data dictionary: Lung cancer - DLCA: Difference between revisions

From Beacon
No edit summary
No edit summary
Line 8: Line 8:
'''Table 1:''' Healthcare Institution Information
'''Table 1:''' Healthcare Institution Information
{| class="wikitable"
{| class="wikitable"
! Variables
! Variables !! Description
|-
|-
| Healthcare Institution (Zorginstelling)
| Zorginstelling || Healthcare Institution  
|-
|-
| Unique Patient Number (Uniek Patiëntnummer)
| Uniek Patiëntnummer || Unique Patient Number  
|-
|-
| Date of Birth (Geboortedatum)
| Geboortedatum || Date of Birth  
|-
|-
| Gender (Geslacht)
| Geslacht || Gender
|-
|-
| Date of Death (if applicable) (Datum overlijden)
| Datum overlijden || Date of Death (if applicable)
|}
|}


'''Table 2:''' Patient Health and Comorbidities
'''Table 2:''' Patient Health and Comorbidities
{| class="wikitable"
{| class="wikitable"
! Variables
! Variables !! Description
|-
|-
| Comorbidities Date (Datum comorbiditeiten)
| Datum comorbiditeiten || Comorbidities Date
|-
|-
| Chronic Lung Disease (Chronische longziekte)
| Chronische longziekte || Chronic Lung Disease
|-
|-
| COPD/ CARA/ Emphysema/ Chronic Bronchitis (COPD/ CARA/ emfyseem/ chron. bronch.)
| COPD/ CARA/ emfyseem/ chron. bronch. || COPD/ CARA/ Emphysema/ Chronic Bronchitis
|-
|-
| Lung Fibrosis (Longfibrose)
| Longfibrose || Lung Fibrosis
|-
|-
| Status After Lung Transplantation (Status na longtransplantatie)
| Status na longtransplantatie || Status After Lung Transplantation
|-
|-
| Angina Pectoris, Myocardial Infarction, PTCA, CABG, Valve Disease, Valve Replacement (Angina pectoris, Myocardinfarct, PTCA, CABG, Kleplijden, Klepvervanging)
| Angina pectoris, Myocardinfarct, PTCA, CABG, Kleplijden, Klepvervanging || Angina Pectoris, Myocardial Infarction, PTCA, CABG, Valve Disease, Valve Replacement
|-
|-
| Atrial Fibrillation/Flutter, Heart Rhythm Disorder (Atriumfibrilleren/-flutter, Hartritmestoornis)
| Atriumfibrilleren/-flutter, Hartritmestoornis || Atrial Fibrillation/Flutter, Heart Rhythm Disorder
|-
|-
| Heart Failure (Decompensatio cordis, Congestief hartfalen)
| Decompensatio cordis, Congestief hartfalen || Heart Failure
|-
|-
| Peripheral Vascular Disease/Aortic Aneurysm (Perifeer vaatlijden/aneurysma aorta)
| Perifeer vaatlijden/aneurysma aorta || Peripheral Vascular Disease/Aortic Aneurysm
|-
|-
| Hypertension (Hypertensie)
| Hypertensie || Hypertension
|-
|-
| Carotid Stenosis (Carotis stenose)
| Carotis stenose || Carotid Stenosis
|-
|-
| DVT/Thrombophlebitis, Pulmonary Embolism (DVT/trombosebeen, Longembolie)
| DVT/trombosebeen, Longembolie || DVT/Thrombophlebitis, Pulmonary Embolism
|}
|}


'''Table 3:''' Cancer and Tumor Information
'''Table 3:''' Cancer and Tumor Information
{| class="wikitable"
{| class="wikitable"
! Variables
! Variables !! Description
|-
|-
| Type of Tumor, Location of Tumor, Tumor Diameter (Type tumor, Locatie tumor, Diameter tumor)
| Type tumor, Locatie tumor, Diameter tumor || Type of Tumor, Location of Tumor, Tumor Diameter
|-
|-
| Presence of Separate Tumor Nodules (Is er naast de primaire tumor sprake van (een) separate tumornodus/noduli)
| Is er naast de primaire tumor sprake van (een) separate tumornodus/noduli || Presence of Separate Tumor Nodules
|-
|-
| Pathological T-stage, N-stage, M-stage (Geaggregeerd pathologisch T-stadium, N-stadium, M-stadium)
| Geaggregeerd pathologisch T-stadium, N-stadium, M-stadium || Pathological T-stage, N-stage, M-stage
|}
|}


'''Table 4:''' Surgical Details
'''Table 4:''' Surgical Details
{| class="wikitable"
{| class="wikitable"
! Variables
! Variables !! Description
|-
|-
| Surgery Date, Type of Procedure, Side of Operation (Datum van verrichting, Kies verrichting, Zijde)
| Datum van verrichting, Kies verrichting, Zijde || Surgery Date, Type of Procedure, Side of Operation
|-
|-
| Previous Lung Resections via Thoracic Surgery (Eerdere longresectie(s) middels een thoraxoperatie?)
| Eerdere longresectie(s) middels een thoraxoperatie? || Previous Lung Resections via Thoracic Surgery
|-
|-
| ECOG Performance Status (ECOG performance status)
| ECOG performance status || ECOG Performance Status
|-
|-
| Predicted FEV1 %, DLCO SB %, VO2 max (Predicted FEV1 %, DLCO SB %, VO2 max ml/kg/min)
| Predicted FEV1 %, DLCO SB %, VO2 max ml/kg/min || Predicted FEV1 %, DLCO SB %, VO2 max
|}
|}


'''Table 5:''' Diagnostic Imaging and Biopsy
'''Table 5:''' Diagnostic Imaging and Biopsy
{| class="wikitable"
{| class="wikitable"
! Variables
! Variables !! Description
|-
|-
| CT Scan, PET Scan Dates and Findings (Is er een CT-scan verricht?, Is er een PET-scan verricht?, Datum laatste CT-scan of PET-CT-scan)
| Is er een CT-scan verricht?, Is er een PET-scan verricht?, Datum laatste CT-scan of PET-CT-scan || CT Scan, PET Scan Dates and Findings
|-
|-
| EUS, EBUS, Mediastinoscopy (Is er een EUS verricht?, Is er een EBUS verricht?, Is er een mediastinoscopie/-tomie verricht?)
| Is er een EUS verricht?, Is er een EBUS verricht?, Is er een mediastinoscopie/-tomie verricht? || EUS, EBUS, Mediastinoscopy
|}
|}


'''Table 6:''' Treatment and Complications
'''Table 6:''' Treatment and Complications
{| class="wikitable"
{| class="wikitable"
! Variables
! Variables !! Description
|-
|-
| Treatment Prior to Surgery, Treatment Post-Surgery (Werd de patiënt voor de operatie systemisch of radiotherapeutisch behandeld?, Chemotherapie, Radiotherapie)
| Werd de patiënt voor de operatie systemisch of radiotherapeutisch behandeld?, Chemotherapie, Radiotherapie || Treatment Prior to Surgery, Treatment Post-Surgery
|-
|-
| Surgical Approach and Conversion Reason (Toegang thorax, Reden voor conversie)
| Toegang thorax, Reden voor conversie || Surgical Approach and Conversion Reason
|-
|-
| Postoperative Complications, Their Severity (Complicaties binnen 30 dagen na resectie?, Ernst van de complicatie)
| Complicaties binnen 30 dagen na resectie?, Ernst van de complicatie || Postoperative Complications, Their Severity
|}
|}


==== Carcinoma DLCA-L ====
==== Carcinoma DLCA-L ====


'''Patient and Care Center Information'''
'''Table 7:'''Patient and Care Center Information.
* Organisation Name (Zorginstelling)
{| class="wikitable"
* Unique Patient Number (Uniek Patiëntnummer)
! Variables !! Description
* Date of Birth (Geboortedatum)
|-
* Gender (Geslacht)
| Zorginstelling || Organisation Name
* Date of Death (if applicable) (Datum overlijden)
|-
| Uniek Patiëntnummer || Unique Patient Number
|-
| Geboortedatum || Date of Birth
|-
| Geslacht || Gender
|-
| Datum overlijden || Date of Death (if applicable)
|}




'''Disease Nature and Diagnosis'''
'''Table 8:''' Disease Nature and Diagnosis.
* Suspected Nature of Disease (Wat is de vermeende aard van de ziekte?)
{| class="wikitable"
* Date of First Clinic Visit to Pulmonologist (Datum eerste polikliniekbezoek bij de longarts)
! Variables !! Description
* Outcome of First Clinic Visit (Uitkomst eerste polikliniekbezoek)
|-
* Date Pathological Diagnosis Established (Datum waarop pathologische diagnose gesteld is)
| Wat is de vermeende aard van de ziekte? || Suspected Nature of Disease
* Type of Mesothelioma (Soort mesothelioom)
|-
| Datum eerste polikliniekbezoek bij de longarts || Date of First Clinic Visit to Pulmonologist
|-
| Uitkomst eerste polikliniekbezoek || Outcome of First Clinic Visit
|-
| Datum waarop pathologische diagnose gesteld is || Date Pathological Diagnosis Established
|-
| Soort mesothelioom || Type of Mesothelioma
|}


'''Table 9:''' Treatment and Pathology.
{| class="wikitable"
! Variables !! Description
|-
| Hoeveel lijnen palliatieve systemische therapieën || Number of Palliative Systemic Therapies Given
|-
| Welke eerstelijns behandeling || First-line Treatment
|-
| Welke tweedelijns behandeling || Second-line Treatment
|-
| PA details NSCLC, PA details adenocarcinoom, etc. || Pathology Details for Various Cancers
|-
| Is er moleculaire diagnostiek verricht? || Molecular Diagnostics Conducted
|-
| Wat is de PD-L1 expressie op de tumor || PD-L1 Expression on Tumor
|}


'''Treatment and Pathology'''
'''Table 10:''' Clinical Staging and Metastasis.
* Number of Palliative Systemic Therapies Given (Hoeveel lijnen palliatieve systemische therapieën)
{| class="wikitable"
* First-line Treatment (Welke eerstelijns behandeling)
! Variables !! Description
* Second-line Treatment (Welke tweedelijns behandeling)
|-
* Pathology Details (PA Details) for Various Cancers (PA details NSCLC, PA details adenocarcinoom, etc.)
| Klinisch T-stadium || Clinical T-Stage
* Molecular Diagnostics Conducted (Is er moleculaire diagnostiek verricht?)
|-
* PD-L1 Expression on Tumor (Wat is de PD-L1 expressie op de tumor)
| Klinisch N-stadium || Clinical N-Stage
|-
| Klinisch M-stadium || Clinical M-Stage
|-
| Aantal metastasen || Number of Metastases
|-
| Bijnier, Bot, Lever, Hersenen, Anders || Metastasis Locations
|}


'''Table 11:''' Treatment Modalities.
{| class="wikitable"
! Variables !! Description
|-
| Chirurgie || Surgery
|-
| Chemoradiotherapie || Chemoradiotherapy
|-
| Radiotherapie || Radiotherapy
|-
| Chemotherapie || Chemotherapy
|-
| Doelgerichte therapie || Targeted Therapy
|-
| Immunotherapie || Immunotherapy
|}


'''Clinical Staging and Metastasis'''
'''Table 12:''' Follow-Up and Recurrence.
* Clinical T-Stage (Klinisch T-stadium)
{| class="wikitable"
* Clinical N-Stage (Klinisch N-stadium)
! Variables !! Description
* Clinical M-Stage (Klinisch M-stadium)
|-
* Number of Metastases (Aantal metastasen)
| Datum follow-up || Date of Follow-Up
* Metastasis Locations (Bijnier, Bot, Lever, Hersenen, Anders)
|-
| Is de patient overleden? || Patient Status at Follow-Up
|-
| Op welke datum werd recidief / progressie vastgesteld || Date of Recurrence or Progression Detected
|}


 
'''Table 13:''' SARS-CoV-2 Infection Variables.
'''Treatment Modalities'''
{| class="wikitable"
* Surgery (Chirurgie)
! Variables !! Description
* Chemoradiotherapy (Chemoradiotherapie)
|-
* Radiotherapy (Radiotherapie)
| Wat was de datum van de eerste verdenking op SARS-CoV-2 besmetting || Date of First Suspicion of SARS-CoV-2 Infection
* Chemotherapy (Chemotherapie)
|-
* Targeted Therapy (Doelgerichte therapie)
| Wat was de datum van de eerste positieve labtest op SARS-CoV-2 || Date of First Positive Lab Test for SARS-CoV-2
* Immunotherapy (Immunotherapie)
|}
 
 
'''Follow-Up and Recurrence'''
* Date of Follow-Up (Datum follow-up)
* Patient Status at Follow-Up (Is de patient overleden?)
* Date of Recurrence or Progression Detected (Op welke datum werd recidief / progressie vastgesteld)
 
 
'''SARS-CoV-2 Infection Variables'''
* Date of First Suspicion of SARS-CoV-2 Infection (Wat was de datum van de eerste verdenking op SARS-CoV-2 besmetting)
* Date of First Positive Lab Test for SARS-CoV-2 (Wat was de datum van de eerste positieve labtest op SARS-CoV-2)

Revision as of 15:28, 26 May 2024

Go back to Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands) page.

This is a summary of the variables available in the database. You can download the complete data dictionary. Click here to learn more.

Surgery - DLCA-S

Table 1: Healthcare Institution Information

Variables Description
Zorginstelling Healthcare Institution
Uniek Patiëntnummer Unique Patient Number
Geboortedatum Date of Birth
Geslacht Gender
Datum overlijden Date of Death (if applicable)

Table 2: Patient Health and Comorbidities

Variables Description
Datum comorbiditeiten Comorbidities Date
Chronische longziekte Chronic Lung Disease
COPD/ CARA/ emfyseem/ chron. bronch. COPD/ CARA/ Emphysema/ Chronic Bronchitis
Longfibrose Lung Fibrosis
Status na longtransplantatie Status After Lung Transplantation
Angina pectoris, Myocardinfarct, PTCA, CABG, Kleplijden, Klepvervanging Angina Pectoris, Myocardial Infarction, PTCA, CABG, Valve Disease, Valve Replacement
Atriumfibrilleren/-flutter, Hartritmestoornis Atrial Fibrillation/Flutter, Heart Rhythm Disorder
Decompensatio cordis, Congestief hartfalen Heart Failure
Perifeer vaatlijden/aneurysma aorta Peripheral Vascular Disease/Aortic Aneurysm
Hypertensie Hypertension
Carotis stenose Carotid Stenosis
DVT/trombosebeen, Longembolie DVT/Thrombophlebitis, Pulmonary Embolism

Table 3: Cancer and Tumor Information

Variables Description
Type tumor, Locatie tumor, Diameter tumor Type of Tumor, Location of Tumor, Tumor Diameter
Is er naast de primaire tumor sprake van (een) separate tumornodus/noduli Presence of Separate Tumor Nodules
Geaggregeerd pathologisch T-stadium, N-stadium, M-stadium Pathological T-stage, N-stage, M-stage

Table 4: Surgical Details

Variables Description
Datum van verrichting, Kies verrichting, Zijde Surgery Date, Type of Procedure, Side of Operation
Eerdere longresectie(s) middels een thoraxoperatie? Previous Lung Resections via Thoracic Surgery
ECOG performance status ECOG Performance Status
Predicted FEV1 %, DLCO SB %, VO2 max ml/kg/min Predicted FEV1 %, DLCO SB %, VO2 max

Table 5: Diagnostic Imaging and Biopsy

Variables Description
Is er een CT-scan verricht?, Is er een PET-scan verricht?, Datum laatste CT-scan of PET-CT-scan CT Scan, PET Scan Dates and Findings
Is er een EUS verricht?, Is er een EBUS verricht?, Is er een mediastinoscopie/-tomie verricht? EUS, EBUS, Mediastinoscopy

Table 6: Treatment and Complications

Variables Description
Werd de patiënt voor de operatie systemisch of radiotherapeutisch behandeld?, Chemotherapie, Radiotherapie Treatment Prior to Surgery, Treatment Post-Surgery
Toegang thorax, Reden voor conversie Surgical Approach and Conversion Reason
Complicaties binnen 30 dagen na resectie?, Ernst van de complicatie Postoperative Complications, Their Severity

Carcinoma DLCA-L

Table 7:Patient and Care Center Information.

Variables Description
Zorginstelling Organisation Name
Uniek Patiëntnummer Unique Patient Number
Geboortedatum Date of Birth
Geslacht Gender
Datum overlijden Date of Death (if applicable)


Table 8: Disease Nature and Diagnosis.

Variables Description
Wat is de vermeende aard van de ziekte? Suspected Nature of Disease
Datum eerste polikliniekbezoek bij de longarts Date of First Clinic Visit to Pulmonologist
Uitkomst eerste polikliniekbezoek Outcome of First Clinic Visit
Datum waarop pathologische diagnose gesteld is Date Pathological Diagnosis Established
Soort mesothelioom Type of Mesothelioma

Table 9: Treatment and Pathology.

Variables Description
Hoeveel lijnen palliatieve systemische therapieën Number of Palliative Systemic Therapies Given
Welke eerstelijns behandeling First-line Treatment
Welke tweedelijns behandeling Second-line Treatment
PA details NSCLC, PA details adenocarcinoom, etc. Pathology Details for Various Cancers
Is er moleculaire diagnostiek verricht? Molecular Diagnostics Conducted
Wat is de PD-L1 expressie op de tumor PD-L1 Expression on Tumor

Table 10: Clinical Staging and Metastasis.

Variables Description
Klinisch T-stadium Clinical T-Stage
Klinisch N-stadium Clinical N-Stage
Klinisch M-stadium Clinical M-Stage
Aantal metastasen Number of Metastases
Bijnier, Bot, Lever, Hersenen, Anders Metastasis Locations

Table 11: Treatment Modalities.

Variables Description
Chirurgie Surgery
Chemoradiotherapie Chemoradiotherapy
Radiotherapie Radiotherapy
Chemotherapie Chemotherapy
Doelgerichte therapie Targeted Therapy
Immunotherapie Immunotherapy

Table 12: Follow-Up and Recurrence.

Variables Description
Datum follow-up Date of Follow-Up
Is de patient overleden? Patient Status at Follow-Up
Op welke datum werd recidief / progressie vastgesteld Date of Recurrence or Progression Detected

Table 13: SARS-CoV-2 Infection Variables.

Variables Description
Wat was de datum van de eerste verdenking op SARS-CoV-2 besmetting Date of First Suspicion of SARS-CoV-2 Infection
Wat was de datum van de eerste positieve labtest op SARS-CoV-2 Date of First Positive Lab Test for SARS-CoV-2
Retrieved from "https://wiki.beaconcancer.org/index.php?title=Data_dictionary:_Lung_cancer_-_DLCA&oldid=18936"
Powered by MediaWiki
Powered by Semantic MediaWiki