Database: German Childhood Cancer Registry (DKKR) (Germany): Difference between revisions
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'''Type of information:''' [[databaseStructure::longitudinal]]. A data dictionary was not found. | '''Type of information:''' [[databaseStructure::longitudinal]]. A data dictionary was not found. | ||
'''Available type of information:''' | '''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer survival]], and [[availableVariable::number of deaths|mortality]] of children with cancer by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::sex]] and [[availableVariable::diagnosis|cancer type]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. | ||
'''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more]. | '''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more]. | ||
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'''Cancer areas of interest:''' [[hasCancerType::C15-C26: Digestive system cancers]]; [[hasCancerType::C30-C39: Lung/chest cancers]]; [[hasCancerType::C45-C49: Soft tissue cancer]]; [[hasCancerType::C50: Breast cancer]]; [[hasCancerType::C60-C63: Male genitalia cancer]]; [[hasCancerType::C69-C72: Eye and brain cancer]] [[hasCancerType::C81-C96: Cancers of the blood and immune system]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. | '''Cancer areas of interest:''' [[hasCancerType::C15-C26: Digestive system cancers]]; [[hasCancerType::C30-C39: Lung/chest cancers]]; [[hasCancerType::C45-C49: Soft tissue cancer]]; [[hasCancerType::C50: Breast cancer]]; [[hasCancerType::C60-C63: Male genitalia cancer]]; [[hasCancerType::C69-C72: Eye and brain cancer]] [[hasCancerType::C81-C96: Cancers of the blood and immune system]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. | ||
'''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html Click here to access]. | '''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html Click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access]]]. | ||
'''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access]. | '''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access]. | ||
Revision as of 13:26, 6 June 2024
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Type of database: registry.
Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.
Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.
Type of information: longitudinal. A data dictionary was not found.
Available type of information: cancer incidence, cancer survival, and mortality of children with cancer by year, age, sex and cancer type. Click here to learn more.
Source of Information: Information about GPOH study patients is sent to the DKKR. Click here to learn more.
Data level: national level.
Number of records: Covers more than 95% of the population.
Date range: 1980 onwards.
Cancer areas of interest: C15-C26: Digestive system cancers; C30-C39: Lung/chest cancers; C45-C49: Soft tissue cancer; C50: Breast cancer; C60-C63: Male genitalia cancer; C69-C72: Eye and brain cancer C81-C96: Cancers of the blood and immune system. Click here to learn more.
Data access: partially publicly available. Click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
