Data Dictionary: ZfkD Cancer Registry (Germany)

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Variable (English)	Description	Value range
Date of birth	Patient's date of birth represented in international format YYYY-MM-DD.	Date YYYY-MM-DD
Date of death or last known alive date	Date of death (imputed) or last known alive date. For DCO cases, date of death = incidence date.	Date YYYY-MM-DD
Other cause of death, ICD-10 code	Other cause(s) of death as reported to the registry, ICD-10 code	ICD-10 code
Other cause of death, ICD-10 version	ICD-10 version used to encode other cause(s) of death	ICD-10 version
Diagnosis date	Date of incidence represented in international format YYYY-MM-DD. For DCO cases, incidence date = date of death.	Date YYYY-MM-DD
Year of incidence	Year of incidence. For DCO cases, year of incidence is equal to year of death.	Date YYYY
Age at diagnosis	Number of years between date of birth and date of diagnosis	Age (years)
Place of residence at diagnosis	"Place of residence at diagnosis, represented by 5-digit area code (""Kreiskennziffer"")"	5-digit area code
Place of residence at diagnosis	"Place of residence at diagnosis, represented by 2-digit area code (""Bundesland"")"	2-digit area code
Tumour diagnosis, ICD-10 code	ICD-10 diagnostic code of tumour	ICD-10, 4-digit code
Tumour diagnosis, ICD-10 version	ICD-10 version used to encode tumour diagnosis	ICD-10 version
Topography of tumour, ICD-O-3 code	Tumour site represented by ICD-O-3 topography code	ICD-O-3 (topography section) 4-digit code
Morphology of tumour, ICD-O-3 code	Morphology and behavior of tumour represented by 5-digit ICD-O-3 code. The fifth digit indicates tumour behavior (/0 benign; /1 uncertain; /2 carcinoma in situ; /3 malignant).	ICD-O-3 (morphology section), 5-digit code
Number of lymph nodes examined	Number of lymph nodes that were examined for the presence of cancer cells	(n) = number of lymph nodes
Number of lymph nodes affected	Number of lymph nodes that contain cancer cells	(n) = number of lymph nodes
cTNM: T	Describes the size of the primary tumour. Staging according to tumour-specific TNM.	T stage, tumour-specific
cTNM: N	Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM.	N stage, tumour-specific
cTNM: UICC Stage	UICC Stage according to TNM. Describes the anatomical extent of disease.	UICC stage, tumour-specific
pTNM: T	Describes the size of the primary tumour. Staging according to tumour-specific TNM.	T stage, tumour-specific
pTNM: N	Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM.	N stage, tumour-specific
pTNM: UICC stage	UICC Stage according to TNM. Describes the anatomical extent of disease.	UICC stage, tumour-specific
Other classification system: name	Name and/or type of other classification(s) used	e.g. Ann Arbor staging, WHO Classification of CNS Tumours, AJCC
Other classification system: stage	Stage assigned based on other classification system	Stage
Survival time	Time interval between incidence date and death	(n) = number of days
Tumour size	Maximum diameter of invasive carcinoma (in mm)	(n) = tumour size in mm
DCIS size	Maximum diameter of ductal carcinoma in situ (in mm)	(n) = DCIS size in mm
PSA level	PSA level (ng/mL)	(n) = level in ng/mL
PSA level date	Date of PSA blood test	Date YYYY-MM-DD
Gleason: primary grade	Primary Gleason grade	1, 2, 3, 4 or 5
Gleason: secondary grade	Secondary Gleason grade	1, 2, 3, 4 or 5
Gleason score	Gleason score	2, 3, 4, 5, 6, 7, 7a, 7b, 8, 9 or 10
Tumour thickness	Thickness of tumour (mm)	(n) = thickness in mm
LDH level	LDH level (units per liter)	(n) = level in U/L
Surgery date	Surgery date represented in ISO 8601 format YYYY-MM-DD. Year and month of surgery are collected from registries, day of surgery is assigned an arbitrary value.	Date YYYY-MM-DD
Surgery type	OPS code of surgery	OPS code
OPS version	OPS version used to encode surgery type	OPS version number
Time to surgery	Number of days between diagnosis and surgery	(n) = number of days
Radiotherapy start date	Radiotherapy start date	Date YYYY-MM-DD
Percutaneous radiotherapy - Stereotactic	Indicates if percutaneous radiotherapy (external beam radiotherapy) was applied using stereotactic techniques.	ST = stereotactic
Percutaneous radiotherapy - Respiratory-gated	Indicates if percutaneous radiotherapy (external beam radiotherapy) was respiratory-gated.	4D = respiratory-gated
Radiotherapy duration	Number of days between diagnosis and surgery	(n) = number of days
Time to radiotherapy	Time interval between incidence date and radiotherapy start date (days)	(n) = number of days
Systemic therapy drug	Medication(s) used for systemic therapy. Multiple medications require separate entries.	Name or: ATC code + ATC version
Systemic therapy protocol type	Systemic therapy protocol name or code.	"Name or: protocol code
Systemic therapy protocol	Systemic therapy protocol code.	Suggested guidance: https://plattform65c.atlassian.net/wiki/spaces/UMK/pages/15532519/Protokolle
Systemic therapy protocol	Systemic therapy protocol name	(name) = protocol name
Systemic therapy protocol	Systemic therapy protocol version	(version) = protocol version
Systemic therapy start date	Systemic therapy start date	Date YYYY-MM-DD
Systemic therapy duration	Systemic therapy duration (days)	(n) = number of days
Time to systemic therapy	Time interval between incidence date and systemic therapy start date (days)	(n) = number of days
Follow-up date	Date of most recent follow-up evaluation of tumour status	Date YYYY-MM-DD
TNM: T	Describes the size of the primary tumour. Staging according to tumour-specific TNM.	T stage, tumour-specific
TNM: N	Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM.	N stage, tumour-specific
TNM: UICC stage	UICC Stage at follow-up according to TNM. Describes the anatomical extent of disease.	UICC stage, tumour-specific
Other classification system: name	Name and/or type of other classification(s) used	e.g. Ann Arbor staging, WHO Classification of CNS Tumours, AJCC
Other classification system: stage	Stage assigned based on other classification system	Stage Basis of diagnosis Describes how the tumour was identified "0 = death certificate only (DCO); 1 = clinical, ie physical exam only (no tumour-specific diagnostics); 2 = clinical investigation using diagnostic techniques such as imaging, endoscopy, laparatomy, autopsy (no histopathology); 4 = specific tumour markers; 5 = cytology; 6 = histopathology, metastasis; 7 = histopathology, primary tumour; 9 = unknown" Tumour laterality Describes which side of a paired organ is affected "L = left; R = right; B = bilateral; M = center; U = unknown; T = not applicable (e.g., systemic disease)" Death certificate notified (DCN) Indicates whether or not the case was first notified by death certificate (official cause of death). "J = Yes; N = No" Survival time Time interval between incidence date and death (n) = number of days Tumour size Maximum diameter of invasive carcinoma (in mm) (n) = tumour size in mm DCIS size Maximum diameter of ductal carcinoma in situ (in mm) (n) = DCIS size in mm Menopausal status Menopausal status before initiation of treatment. Postmenopausal = time since last menstruation > 1 year OR E2 and FSH within postmenopausal range. "1 = premenopausal (includes perimenopausal); 3 = postmenopausal; U = unknown" Estrogen receptor status Estrogen receptor status according to immunoreactivity score (IRS) "P = positive (IRS >= 1); N = negative; U = unknown" Progesterone receptor status Progesterone receptor status according to immunoreactivity score (IRS) "P = positive (IRS >= 1); N = negative; U = unknown" HER2 status HER2 (ERBB2) status "P = positive (ICH+++ or: ICH++ and positive ISH); N = negative; U = unknown" PSA level PSA level (ng/mL) (n) = level in ng/mL PSA level date - accuracy Indicates if only year is accurate (M), if year and month are accurate (T), or if year and month are estimated (V). Please note: Day is not collected from registries and assigned an arbitrary value (usu. 15) by ZfKD. "M = year is accurate, month is estimated; T = year and month are accurate; V = year and month are estimated" PSA level date Date of PSA blood test Date YYYY-MM-DD Gleason: primary grade Primary Gleason grade 1, 2, 3, 4 or 5 Gleason: secondary grade Secondary Gleason grade 1, 2, 3, 4 or 5 Gleason score Gleason score 2, 3, 4, 5, 6, 7, 7a, 7b, 8, 9 or 10 Gleason score: sampling method Describes tissue sampling method/origin of tissue sample used to determine Gleason score. "O = prostatectomy; S = punch biopsy; U = unknown" Tumour thickness Thickness of tumour (mm) (n) = thickness in mm Ulceration Indicates whether or not ulceration is present. "J = Yes; N = No" LDH level LDH level (units per liter) (n) = level in U/L Position Rectal carcinoma: Distance between anocutaneous line and aboral tumour margin (in cm) "(n) = distance from anocutaneous line in cm; U = unknown" KRAS mutation Indicates presence of KRAS proto-oncogene mutations "W = wild type; M = mutation; U = unknown; N = not assessed" Surgery date - accuracy Indicates if only year is accurate (M), if year and month are accurate (T), or if year and month are estimated (V). Please note: Day is not collected from registries and assigned an arbitrary value (usu. 15) by ZfKD. "M = year is accurate, month is estimated; T = year and month are accurate; V = year and month are estimated" Surgery date Surgery date represented in ISO 8601 format YYYY-MM-DD. Year and month of surgery are collected from registries, day of surgery is assigned an arbitrary value. Date YYYY-MM-DD Surgery type OPS code of surgery OPS code