Data Dictionary RNC - Luxembourg

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Information provided by hospital cancer registries (RHC)

Table 1: Patient identification.

National pseudo-anonymization RNC number of the patient

Date of birth

Gender

Country of birth

Hospital file number

RHC registration number

Country of the patient

Postal code of the patient

Municipality of the patient

Referring primary care physician

Table 2: Patient status.

Vital status

Date of last contact

Date of death

Cause of death

Autopsy

Table 3: Clinical description of the disease and staging.

Order number of the tumour

RHC registration number of the tumour

Date of registration of the tumour

Date of tumour diagnosis

Basis of diagnosis

ICD code (topography and morphology)

Laterality

Multifocal tumour

Country of residence at the time of diagnosis

Postal code of residence at the time of diagnosis

Locality of residence at the time of diagnosis

Circumstances of tumour discovery

Family history

Personal history

Comorbidities

Performance score (WHO/ECOG)

Risk factors

Results of clinical examination (Initial assessment)

Types of performed tests (Initial assessment)

Tests dates (Initial assessment)

Tests results (Initial assessment)

Types of performed tests (staging evaluation)

Tests dates (staging evaluation)

Tests results (staging evaluation)

Tests date of serum tumour markers

Result of serum tumour markers

Laboratory of serum tumour markers

Clinical tumour size

Clinical lymph node involvement

Clinical TNM

Clinical metastases at the time of diagnosis

Table 4: Histological characteristics of the tumour.

Cytology procedure

Date of cytology procedure

Result of cytology procedure

Laboratory of cytology procedure

Biopsy procedure

Date of biopsy procedure

Result of biopsy procedure

Laboratory of biopsy procedure

Vascular invasion

Lymphatic invasion

Perineural sheath invasion

Vascular emboli

Capsular rupture

Percentage of tumour invasion

Distance from resection margins

Specific scores by location

Conducted analises of tissue tumour markers and molecular alterations

Date of analises of tissue tumour markers and molecular alterations

Result of analises of tissue tumour markers and molecular alterations

Laboratory of analises of tissue tumour markers and molecular alterations

Histological size

Pathological lymph node involvement

Number of examined and positive lymph nodes

Tumour residue

Pathological TNM,

Specific grade by location

Laboratory

Pathological Metastases at the time of diagnosis

Grouping by extension stages.

Table 5: Revised diagnosis of the tumour.

Revised incidence date

Revised basis of diagnosis

Revised ICD code (topography and morphology)

Laterality

Laboratory

Table 6: Information on therapeutic management.

Initial treatment performed

Inclusion in a therapeutic trial

Type of surgical intervention

Date of surgical intervention

Post-operative complications

Procedure for excision of regional lymph nodes

Surgeon's RNC identification number

Hospital facility

Date of discharge from hospital

Type of chemotherapy and drug molecules

Chemotherapy start date

Chemotherapy referring physician

Chemotherapy hospital facility.

Type of hormone therapy and drug molecules

Hormone terapy start date

Hormone terapy referring physician

Hormone therapy hospital facility

Type of radiotherapy

Radiotherapy irradiated fields

Radiotherapy start date

Radiotherapy total dose

Radiotherapy number of sessions

Radiotherapy referring physician

Radiotherapy center

Type of targeted therapy and drug molecules

Targeted Therapy start date

Targeted Therapy referring physician

Targeted Therapy hospital facility

Other Treatments

Date of genetic consultation

Location of genetic consultation.

Date of Multidisciplinary Consultation Meetings (RCP)

Location of RCP

Title of the RCP

RNC identification number of RCP attending physicians

Nature of RCP proposal

Proposed therapeutic protocol

Table 7: Tumour follow-up.

Location

Date of first recurrence

Basis of diagnosis

Location of first distant metastasis

Date of first distant metastasis

Information provided by the National Breast Cancer Screening Program

Table 1: National RNC pseudo-anonymization number of the woman.

Date of birth)

Country

Postal code

Locality (town/city)

Dates of Invitations to the Mammography Program

Dates of Participation in the Mammography Program

Dates of examinations conducted as part of the Mammography Program

Types of examinations conducted as part of the Mammography Program

Results of examinations conducted as part of the Mammography Program

Information provided by the National Health Fund (CNS)

Table 1: Data to be transmitted to RNC per patient (Databases of patients treated abroad).

National RNC Pseudo-anonymization Number of the patient

Date of birth

Gender

Country

Postal code

Locality (town/city)

Name and specialty of the physician who requested services abroad

Data on the pathology

Types of services

Dates of services

Locations of services

Table 2: Data to be transmitted to RNC per hospital stay for cancer.

National RNC Pseudo-anonymization Number of the patient

Date of birth

Gender

Country

Postal code

Locality (town/city)

ICD-10 Codes for the discharge diagnosis

Name of the hospital facility related to the considered hospital stay

Admission date

Discharge date

Mode of hospital discharge.

Information provided by the Joint European Communities Health Insurance Scheme (RCAM)

Table 1: Data to be transmitted to RNC per patient.

National RNC Pseudo-anonymization Number of the patient

Date of birth

Gender

Country

Postal code

Locality (town/city)

Name and specialty of the physician who requested services abroad

Data on the pathology

Types of services

Dates of services

Locations of services

Table 2: Data to be transmitted to RNC per hospital stay for cancer.

National RNC Pseudo-anonymization Number of the patient

Date of birth

Gender

Country

Postal code

Locality (town/city)

ICD-10 Codes for the discharge diagnosis

Name of the hospital facility related to the considered hospital stay

Admission date

Discharge date

Mode of hospital discharge

Information provided by the Directorate of Health (death certificates)

Table 1: Data to be transmitted to RNC per deceased individual.

National RNC Pseudo-anonymization Number of the patient

Date of birth

Gender

Country (at the time of death)

Postal code (at the time of death)

Locality (at the time of death)

Date of death

Place of death

Primary cause of death (1 ICD-10 code)

Immediate diseases (up to 3 possible ICD-10 codes)

Concurrent diseases (up to 2 possible ICD-10 codes).

Information provided by the Civil status register

Table 1: Data to be transmitted to RNC per deceased individual.

National RNC Pseudo-anonymization Number of the patient

Date of birth

Gender

Country (at the time of death)

Postal code (at the time of death)

Locality (at the time of death)

Date of death

Place of death

Information provided by the private medical analysis laboratories

Table 1: Examinations reports sent by the laboratories to RNC.

Analysis of Tumour Markers

Analysis of Serum Tumour Markers

Analysis of Tissue Tumour Markers

Analysis of Molecular Alterations with Predictive Value for Response to Chemotherapy or Targeted Therapy

Cytology performed in cases of severe dysplasia and malignant tumours