Database: AIFA Monitoring Registries Platform (Italy)

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Type of Database: registry.

Primary purpose: To monitor the pharmaceutical treatment of specific diseases or clinical conditions in Italy.

Sponsor, manager or home institution: Italian Medicines Agency (AIFA).

Type of information: longitudinal. It includes information such as patient demographics (age, gender, residency), clinical characteristics (disease parameters, genetic data, biomarkers), treatment details (medicinal product name, dose, formulation, indication), adverse events and side effects, cause of death, medical procedures, healthcare provider details, healthcare utilization (visits, hospital stays), and lifestyle factors (alcohol and tobacco use). Click here to learn more.

Source of information: Medical records of patients treated with specific pharmaceutical products.

Data level: national level.

Number of Records: 3,408,040.

Date Range: 2013 onwards.

Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more.

Data access: not publicly available. Click here to access. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

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