Greece: Difference between revisions

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'''Information/Contact for data request:''' Contact information can be found [http://dlib.statistics.gr/portal/page/portal/ESYE/contact here].
'''Information/Contact for data request:''' Contact information can be found [http://dlib.statistics.gr/portal/page/portal/ESYE/contact here].
=== Database: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST) ===
'''Sponsor, manager or home institution:''' NARECHEM-ST.
'''Primary purpose:''' Provide information about cancer incidence in children (0-14 years old) across Greece.
'''Type of information:''' Demographic data, personal and family history of the primary child, and comprehensive details concerning the disease, such as confirmed diagnosis coded under ICD-O-3 since 2007, tumor morphology and localization, stage, metastases, and survival. Moreover, biological samples are accessible for the majority of cases and controls. The analytical list of other variables that are obtainable through interviews for cases and controls or furnished by treating physicians is electronically preserved. If applicable, bone marrow aspiration slides and biopsy reports are provided, while biopsy specimens are stored in their respective Pathology Departments. There is also follow-up data on all patients as well as biological materials collected and stored.
'''Available type of information''': Childhood leukemia in Greece (1996-2019): ACUTE LEUKEMIA (ALL & AML)
· Annual Crude and Age-Standardized Incidence Rates per 1,000,000
· Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype
· Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype and gender
· Incidence Rates per 1,000,000 by age group and gender
· Incidence Rates per 1,000,000 by age group and histological subtype
Childhood lymphoma in Greece (1996-2019): LYMPHOMA (HL and NHL)
· Annual Crude and Age-Standardized Incidence Rates per 1,000,000
· Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype
· Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype
· Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype and gender
· Incidence Rates per 1,000,000 by age group and histological subtype
· Incidence Rates per 1,000,000 by age group and gender
Childhood central nervous system (CNS) tumors (2010-2019)
· Incidence Rates per 1,000,000 by age group and histological subtype
· Annual Crude and Age-Standardized Incidence Rates per 1,000,000
· Number of cases by behavior
· Incidence Rates per 1,000,000 by age group and gender
· Age-Standardized Incidence Rates (AIR) per 1,000,000 by behavior and gender
· Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by behavior
· Number of cases by ICCC-3 group III histological subtype
· Number of cases by histological subtype
· Incidence Rates per 1,000,000 by age group and ICCC-3 group III histological subtype
· Incidence Rates per 1,000,000 by age group and histological subtype
· Age-Standardized Incidence Rates (AIR) per 1,000,000 by gender and ICCC-3 group III histological subtype
· Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype and gender
Childhood Neuroblastomas in Greece (2009-2019)
· Percentage of cases by stage of INRG
· Annual Crude and Age-Standardized Incidence Rates per 1,000,000
· Incidence Rates per 1,000,000 by age group and gender
· Annual Crude Incidence Rates (CIR) per 1,000,000 by age group
· Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by gender
Childhood Wilm’s Tumors (Nephroblastomas) in Greece (2009-2019)
· Percentage of cases by anatomical stage
· Annual Crude and Age-Standardized Incidence Rates per 1,000,000
· Incidence Rates per 1,000,000 by age group and gender
· Annual Crude and Age-Standardized Incidence Rates per 1,000,000
· Incidence Rates per 1,000,000 by age group and gender
· Annual Crude Incidence Rates (CIR) per 1,000,000 by age group
· Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by gender
Childhood Liver Tumors in Greece (2001-2019)
· Annual Crude and Age-Standardized Incidence Rates per 1,000,000
· Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by gender
· Annual Crude Incidence Rates (CIR) per 1,000,000 by age group
· Incidence Rates per 1,000,000 by age group and gender
'''Source of Information:''' Reports mainly from seven pediatric hematology-oncology departments across Greece, and personal interviews with children or their guardians.
'''Data level:''' Patient level.
'''Available data level:''' National level.
'''Number of Records:''' About 4000 patients.
'''Date Range:''' 1996 to 2019.
'''Cancer Areas of Interest:''' Leukemias Lymphomas CNS tumors Neuroblastomas and Nephroblastomas (Wilm’s tumors)
'''Open data access:'''
'''Information/Contact for data request:'''


== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
== [[Databases for Clinical Trials, Surveys and Biobanks]] ==

Revision as of 15:02, 18 March 2023

Cancer Centers

Healthcare System

Greece's healthcare system is a combination of public and private providers. The public sector provides universal coverage for citizens, legal residents, and visitors, while the private sector is largely for-profit and serves as a complement to the public system. The system provides a range of benefits, including preventive care, primary care, specialist care, hospitalization, prescription drugs, and mental health services. Patients also have the option to choose their own doctor or healthcare facility.

The National Organization for Healthcare Services Provision (EOPYY) manages the public healthcare system in Greece, with regional managers overseeing healthcare delivery in each of the country's administrative regions. However, the Ministry of Health oversees regulation at every level of the system, as regions currently lack resources to coordinate healthcare.

Greece is improving access and efficiency in healthcare by developing an integrated primary care system with a gatekeeping role, which will eventually require residents to see a GP first before accessing specialist services.

Administrative or Claims Data

Database: ELSTAT Discharge Data

[1]

Sponsor, manager or home institution: Hellenic Statistical Authority (ELSTAT)

Primary purpose: Provide information about patient discharges.

Type of information: Unknown.

Available type of information: Discharged patients filtered by disease category, place of residence, gender, average days of hospitalization and hospitalization outcome.

Source of Information: Annual census collecting data from public and private hospitals.

Data level: Unknown.

Available data level: Regional and national level.

Number of Records: All discharged patients. 1,484,485 patients for 2015.

Date Range: 1996 to 2015.

Cancer Areas of Interest: All.

Open data access: Data is partially publicly available. Available data can be accessed here. Information on how to access data can be found here.

Information/Contact for data request: Contact information can be found here.

Registries

Database: ELSTAT Cause of Death

[1] [2]

Sponsor, manager or home institution: Hellenic Statistical Authority (ELSTAT)

Primary purpose: Provide cause of death information.

Type of information: Unknown.

Available type of information: Cause of death filtered by sex and age.

Source of Information: Administrative records (Death Certificates) provided by the Registries throughout the country and forensic reports in cases of violent or sudden deaths.

Data level: Municipal level.

Available data level: National level.

Number of Records: Unknown.

Date Range: 1956 onwards.

Cancer Areas of Interest: All.

Open data access: Data is partially publicly available. Available information can be found here. Information on how to access data can be found here.

Information/Contact for data request: COntact information can be found here.

Database: ELSTAT Annual Cancer Survey Statistics

Sponsor, manager or home institution: Hellenic Statistical Authority (ELSTAT)

Primary purpose: Provide information about cancer cases from a survey no longer conducted.

Type of information: Cases of cancer filtered by sex, age, region, urban, semi-urban and rural areas, and groups of occupation.

Source of Information: Unknown.

Data level: Regional and national level.

Number of Records: Unknown.

Date Range: 1967 to 1982.

Cancer Areas of Interest: Unknown.

Open data access: Data is publicly available. Access to information can be found here using the search query "Ετήσια στατιστική έρευνα του καρκίνου".

Information/Contact for data request: Contact information can be found here.

Database: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST)

Sponsor, manager or home institution: NARECHEM-ST.

Primary purpose: Provide information about cancer incidence in children (0-14 years old) across Greece.

Type of information: Demographic data, personal and family history of the primary child, and comprehensive details concerning the disease, such as confirmed diagnosis coded under ICD-O-3 since 2007, tumor morphology and localization, stage, metastases, and survival. Moreover, biological samples are accessible for the majority of cases and controls. The analytical list of other variables that are obtainable through interviews for cases and controls or furnished by treating physicians is electronically preserved. If applicable, bone marrow aspiration slides and biopsy reports are provided, while biopsy specimens are stored in their respective Pathology Departments. There is also follow-up data on all patients as well as biological materials collected and stored.

Available type of information: Childhood leukemia in Greece (1996-2019): ACUTE LEUKEMIA (ALL & AML) · Annual Crude and Age-Standardized Incidence Rates per 1,000,000 · Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype · Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype and gender · Incidence Rates per 1,000,000 by age group and gender · Incidence Rates per 1,000,000 by age group and histological subtype

Childhood lymphoma in Greece (1996-2019): LYMPHOMA (HL and NHL) · Annual Crude and Age-Standardized Incidence Rates per 1,000,000 · Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype · Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype · Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype and gender · Incidence Rates per 1,000,000 by age group and histological subtype · Incidence Rates per 1,000,000 by age group and gender

Childhood central nervous system (CNS) tumors (2010-2019) · Incidence Rates per 1,000,000 by age group and histological subtype · Annual Crude and Age-Standardized Incidence Rates per 1,000,000 · Number of cases by behavior · Incidence Rates per 1,000,000 by age group and gender · Age-Standardized Incidence Rates (AIR) per 1,000,000 by behavior and gender · Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by behavior · Number of cases by ICCC-3 group III histological subtype · Number of cases by histological subtype · Incidence Rates per 1,000,000 by age group and ICCC-3 group III histological subtype · Incidence Rates per 1,000,000 by age group and histological subtype · Age-Standardized Incidence Rates (AIR) per 1,000,000 by gender and ICCC-3 group III histological subtype · Age-Standardized Incidence Rates (AIR) per 1,000,000 by histological subtype and gender

Childhood Neuroblastomas in Greece (2009-2019) · Percentage of cases by stage of INRG · Annual Crude and Age-Standardized Incidence Rates per 1,000,000 · Incidence Rates per 1,000,000 by age group and gender · Annual Crude Incidence Rates (CIR) per 1,000,000 by age group · Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by gender

Childhood Wilm’s Tumors (Nephroblastomas) in Greece (2009-2019) · Percentage of cases by anatomical stage · Annual Crude and Age-Standardized Incidence Rates per 1,000,000 · Incidence Rates per 1,000,000 by age group and gender · Annual Crude and Age-Standardized Incidence Rates per 1,000,000 · Incidence Rates per 1,000,000 by age group and gender · Annual Crude Incidence Rates (CIR) per 1,000,000 by age group · Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by gender

Childhood Liver Tumors in Greece (2001-2019) · Annual Crude and Age-Standardized Incidence Rates per 1,000,000 · Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by gender · Annual Crude Incidence Rates (CIR) per 1,000,000 by age group · Incidence Rates per 1,000,000 by age group and gender

Source of Information: Reports mainly from seven pediatric hematology-oncology departments across Greece, and personal interviews with children or their guardians.

Data level: Patient level.

Available data level: National level.

Number of Records: About 4000 patients.

Date Range: 1996 to 2019.

Cancer Areas of Interest: Leukemias Lymphomas CNS tumors Neuroblastomas and Nephroblastomas (Wilm’s tumors)

Open data access:

Information/Contact for data request:

Databases for Clinical Trials, Surveys and Biobanks

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives

Cancer-related Patient Associations and Resources