Database: German Childhood Cancer Registry (DKKR) (Germany): Difference between revisions
(Created page with "{{#subobject:German Childhood Cancer Registry (DKKR) |dct:title=German Childhood Cancer Registry (DKKR) |datatype=registry }} '''Sponsor, manager or home institution:''' Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz. '''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer. '''Type of information:''' Incidence of children with cancer by age and cancer type. '''Source of I...") |
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'''Sponsor, manager or home institution:''' Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz. | '''Sponsor, manager or home institution:''' Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz. | ||
Revision as of 12:43, 4 December 2023
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Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.
Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.
Type of information: Incidence of children with cancer by age and cancer type.
Source of Information: Information about GPOH study patients is sent to the DKKR [1].
Data level: National level.
Number of Records: Covers more than 95% of the population.
Date Range: 1980 onwards.
Cancer Areas of Interest: Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors.
Open data access: Partially publicly available [2], [3]. Instructions to request data for restricted content [4].
Contact information: Information [5].
