Database: ZfKD Cancer Registry (Germany): Difference between revisions

From Beacon
No edit summary
No edit summary
Line 2: Line 2:
Go back to [[Germany]] page
Go back to [[Germany]] page


'''Sponsor, manager or home institution:''' Zentrum für Krebsregisterdaten.
'''Sponsor, manager or home institution:''' [[dataOwner::Zentrum für Krebsregisterdaten]].


'''Primary purpose:''' Collect and compile epidemiological cancer data from state cancer registries at the federal level.
'''Primary purpose:''' Collect and compile epidemiological cancer data from state cancer registries at the federal level.


'''Type of information:''' Patient location, cancer type, cancer location, primary therapies used, cause of death information (in cases of death), among other information. [[Data dictionary: ZfkD Cancer Registry (Germany)| Data Dictionary: ZfkD Cancer Registry]] [https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Informationen_datensatz/info_datensatz_node.html].
'''Type of information:''' Patient location, cancer type, cancer location, primary therapies used, cause of death information (in cases of death), among other information. [[hasDataDictionary::Data dictionary: ZfkD Cancer Registry (Germany)| Data Dictionary: ZfkD Cancer Registry]] [https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Informationen_datensatz/info_datensatz_node.html].


'''Available type of information:''' Incidence, prevalence, mortality and survivorship of cancer, case numbers, crude rate, and age-standardized rate, filtered by cancer type, age, gender, and year.
'''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer prevalence]], [[availableVariable::causes of death]] and [[availableVariable::cancer survival]], case numbers, crude rate, and age-standardized rate, filtered by [[availableVariable::diagnosis]], [[availableVariable::age]], [[availableVariable::sex]], and [[availableVariable::year]].


'''Source of Information:''' Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries [https://www.gekid.de/uebersicht].
'''Source of Information:''' Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries [https://www.gekid.de/uebersicht].


'''Data level:''' Patient Level.
'''Data level:''' [[dataLevel::patient level]].


'''Available data level:''' National level.
'''Available data level:''' [[availableDataLevel::national level]].


'''Number of Records:''' Unknown.
'''Number of Records:''' [[numberRecords::unknown]].


'''Date Range:''' 1999 onwards.
'''Date Range:''' [[dataStart::1999]] [[dataEnd::onwards]].


'''Cancer Areas of Interest:''' [[Cancer Areas of Interest: ZfKD Cancer Registry]].
'''Cancer Areas of Interest:''' [[hasCancerAreasList::Cancer Areas of Interest: ZfKD Cancer Registry]].


'''Data access:''' Partially publicly available [https://www.krebsdaten.de/Krebs/SiteGlobals/Forms/Datenbankabfrage/datenbankabfrage_stufe1_form.html]. Instructions to request data for restricted content [https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdatensatz/forschungsdatensatz_node.html#doc2640318bodyText4].
'''Data access:''' [[dataAvailability::partially publicly available]]
[https://www.krebsdaten.de/Krebs/SiteGlobals/Forms/Datenbankabfrage/datenbankabfrage_stufe1_form.html]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdatensatz/forschungsdatensatz_node.html#doc2640318bodyText4]]].


'''Contact information:''' Information [https://www.krebsdaten.de/Krebs/DE/Content/ZfKD/Kontakt/kontakt_node.html].
'''Contact information:''' Information [https://www.krebsdaten.de/Krebs/DE/Content/ZfKD/Kontakt/kontakt_node.html].

Revision as of 15:46, 6 December 2023

Go back to Germany page

Sponsor, manager or home institution: Zentrum für Krebsregisterdaten.

Primary purpose: Collect and compile epidemiological cancer data from state cancer registries at the federal level.

Type of information: Patient location, cancer type, cancer location, primary therapies used, cause of death information (in cases of death), among other information. Data Dictionary: ZfkD Cancer Registry [1].

Available type of information: cancer incidence, cancer prevalence, causes of death and cancer survival, case numbers, crude rate, and age-standardized rate, filtered by diagnosis, age, sex, and year.

Source of Information: Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries [2].

Data level: patient level.

Available data level: national level.

Number of Records: unknown.

Date Range: 1999 onwards.

Cancer Areas of Interest: Cancer Areas of Interest: ZfKD Cancer Registry.

Data access: partially publicly available

[3]. Instructions to request data for restricted content [4].

Contact information: Information [5].