Database: German Childhood Cancer Registry (DKKR) (Germany): Difference between revisions
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'''Sponsor, manager or home institution:''' Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz. | '''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]]. | ||
'''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer. | '''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer. | ||
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'''Source of Information:''' Information about GPOH study patients is sent to the DKKR [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131]. | '''Source of Information:''' Information about GPOH study patients is sent to the DKKR [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131]. | ||
'''Data level:''' | '''Data level:''' [[dataLevel::national level]]. | ||
'''Number of Records:''' Covers more than 95% of the population. | '''Number of Records:''' Covers more than 95% of the population. | ||
'''Date Range:''' 1980 onwards. | '''Date Range:''' [[dataStart::1980]] [[dataEnd::onwards]]. | ||
'''Cancer Areas of Interest:''' Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors. | '''Cancer Areas of Interest:''' Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors. | ||
'''Open data access:''' | '''Open data access:''' [[dataAvailability::partially publicly available]] [https://www.kinderkrebsregister.de/dkkr/ergebnisse/auswertungen-im-detail.html], [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf]]]. | ||
'''Contact information:''' Information [https://www.kinderkrebsregister.de/dkkr/ueber-uns/personal.html]. | '''Contact information:''' Information [https://www.kinderkrebsregister.de/dkkr/ueber-uns/personal.html]. | ||
Revision as of 15:49, 6 December 2023
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Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.
Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.
Type of information: Incidence of children with cancer by age and cancer type.
Source of Information: Information about GPOH study patients is sent to the DKKR [1].
Data level: national level.
Number of Records: Covers more than 95% of the population.
Date Range: 1980 onwards.
Cancer Areas of Interest: Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors.
Open data access: partially publicly available [2], [3]. Instructions to request data for restricted content [4].
Contact information: Information [5].
