Database: German Childhood Cancer Registry (DKKR) (Germany): Difference between revisions

Revision as of 12:14, 15 May 2024

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Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.

Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.

Type of information: Incidence, survival and mortality of children with cancer by age, sex and cancer type.

Source of Information: Information about GPOH study patients is sent to the DKKR. Click here to learn more.

Data level: national level.

Number of records: Covers more than 95% of the population.

Date range: 1980 onwards.

Cancer areas of interest: C15-C26: Digestive system cancers; C30-C39: Lung/chest cancers; C45-C49: Soft tissue cancer; hasCancerType::C50: Breast cancer]]; C60-C63: Male genitalia cancer; C69-C72: Eye and brain cancer C81-C96: Cancers of the blood and immune system. Click here to learn more.

Open data access: partially publicly available [1]. Instructions to request data for restricted content [2].

Contact information: Information [3].

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+'''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer.
 '''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]].
-'''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer.
+'''Type of information:''' Incidence, survival and mortality of children with cancer by age, sex and cancer type.
-'''Type of information:''' Incidence of children with cancer by age and cancer type.
-'''Source of Information:''' Information about GPOH study patients is sent to the DKKR [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131].
+'''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more].
 '''Data level:''' [[dataLevel::national level]].
-'''Number of Records:''' Covers more than 95% of the population.
+'''Number of records:''' Covers more than 95% of the population.
-'''Date Range:''' [[dataStart::1980]] [[dataEnd::onwards]].
+'''Date range:''' [[dataStart::1980]] [[dataEnd::onwards]].
-'''Cancer Areas of Interest:''' Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors.
+'''Cancer areas of interest:''' [[hasCancerType::C15-C26: Digestive system cancers]]; [[hasCancerType::C30-C39: Lung/chest cancers]]; [[hasCancerType::C45-C49: Soft tissue cancer]]; hasCancerType::C50: Breast cancer]]; [[hasCancerType::C60-C63: Male genitalia cancer]]; [[hasCancerType::C69-C72: Eye and brain cancer]] [[hasCancerType::C81-C96: Cancers of the blood and immune system]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more].
 '''Open data access:''' [[dataAvailability::partially publicly available]] [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html].  Instructions to request data for restricted content [[hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf]]].
 '''Contact information:''' Information [https://www.kinderkrebsregister.de/dkkr/ueber-uns/personal.html].