Germany

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Cancer Centers

National Cancer Center Dresden

Charité Comprehensive Cancer Center

University Cancer Center Frankfurt

Administrative or Claims Data

Database: Diagnosis Related Groups (DRG) Survey

Database: Hospital Statistics

Registries

Database: ZfKD Cancer Registry

Database: Cause of Death Registry

Database: German Childhood Cancer Registry (DKKR)

Databases for Clinical Trials, Surveys and Biobanks

Survey: German Health Interview and Examination Survey for Adults

Clinical Practices Guidelines

Compilation: DKG Guidelines

Compilation: Leitlinienprogramm Onkologie Treatment Guidelines

Latest Policymaking Initiatives

Report: Cancer in Germany

Report: National Association of Statutory Health Insurance Annual Reports

Compilation: Documents regarding Cancer Registry legislation

Reports: Occurrence of Cancer in German

Report: EU Country Cancer Profile 2023

Initiative: National Decade against Cancer

Sponsor, manager or home institution: Federal Ministry of Education and Research (BMBF); Federal Ministry of Health and many other partners.

Primary purpose: To mobilize key players in Germany to collaborate on cancer research, involving patients closely, accelerating innovations, and ultimately reducing the incidence of cancer, improving early diagnosis, and developing better treatments.

Data level: National level.

Access to information: Access Information [1]. Survey: National Decade against Cancer.

Cancer-related Patient Associations and Resources

Compilation: ESMO Patient Guides

Compilation: Self-help Groups and Initiatives

Sponsor, manager or home institution: Charité Comprehensive Cancer Center.

Primary purpose: To support cancer self-help groups and initiatives through cooperation, information, and resources.

Available guides and informations: National contact points for self-help; Regional self-help contact points; Cancer counseling in general; Psychosocial Support; Other languages informations; Prevention; Relatives of cancer patients; Parents of children with cancer; Women and cancer; Young people and cancer; Children and cancer; Men and cancer; After Cancer; Employment And Cancer; Self-Help Creative; Bereavement Groups; Peritoneum; Pancreas; Bladder; Blood; Breast; Colon; Ovary, Fallopian Tube And Uterus And Other Gynecological Tumors; Hereditary Tumor Disease | Familial Tumor Diseases | Genetic Tumor Diseases; Fatigue; Brain; Skin; Testicles; Head - Neck - Larynx - Face - Mouth; Leukemia; Lung; Lymphomas / Non-Hodgkin Lymphomas / Myelomas; Stomach; Neuroendocrine Tumors (Net, Gep); Kidney; Prostate; Sarcomas; Thyroid; Urological Tumors; Vhl - Hippel-Lindau Disease; Vulva.

Type of information: The support groups for people with cancer and their relatives; how to find the support groups; The different types of support groups available; The self-help group and association by type of cancer; Cancer counselings; A list of resources, such as websites, phone numbers, and addresses of support groups in the area.

Access to information: List of guides and informations [2].

Patient Association: Deutsche Krebshilfe (DKH)

Sponsor, manager or home institution: German Cancer Aid.

Primary purpose: To fight cancer in all its manifestations through research, support, and information.

Access to information: Information [3].

Patient Association: Berlin Cancer Society

Sponsor, manager or home institution: Berliner Krebsgesellschaft.

Primary purpose: To provide support and advocacy to people with cancer and their families.

Access to information: Information [4].

Resource: Krebsinformationsdienst

Primary purpose: To provide individuals affected by cancer with up-to-date knowledge, support, and individualized information while offering independent, quality-assured information for professionals involved in cancer care.

Access to information: Information [5].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [6] and Palliative Care [7].