Database: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST) (Greece): Difference between revisions

Revision as of 13:43, 16 May 2024

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Primary purpose: Provide information about cancer incidence in children (0-14 years old) across Greece.

Sponsor, manager or home institution: NARECHEM-ST.

Type of information: Data dictionary has not been found. It includes demographic data, personal and family history of the primary child, confirmed diagnosis, tumor morphology and localization, stage, metastases, and survival. Moreover, biological samples are accessible for the majority of cases and controls. If applicable, bone marrow aspiration slides and biopsy reports are provided, while biopsy specimens are stored in their respective Pathology Departments. There is also follow-up data on all patients as well as biological materials collected and stored. Click here to learn more.

Available type of information: Data Dictionary: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST).

Source of Information: Reports mainly from seven pediatric hematology-oncology departments across Greece, and personal interviews with children or their guardians.

Data level: patient level.

Available data level: national level.

Number of records: About 4000 patients.

Date range: 1996 to 2019.

Cancer areas of interest: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST).

Data access: partially publicly available. Click here to access. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

@@ Line 6: / Line 6: @@
 '''Sponsor, manager or home institution:''' [[dataOwner::NARECHEM-ST]].
-'''Type of information:''' Data dictionary has not been found. It includes demographic data, personal and family history of the primary child, confirmed diagnosis, tumor morphology and localization, stage, metastases, and survival. Moreover, biological samples are accessible for the majority of cases and controls. If applicable, bone marrow aspiration slides and biopsy reports are provided, while biopsy specimens are stored in their respective Pathology Departments. There is also follow-up data on all patients as well as biological materials collected and stored [http://www.narechem.gr/node/7 Click here to learn more].
+'''Type of information:''' Data dictionary has not been found. It includes demographic data, personal and family history of the primary child, confirmed diagnosis, tumor morphology and localization, stage, metastases, and survival. Moreover, biological samples are accessible for the majority of cases and controls. If applicable, bone marrow aspiration slides and biopsy reports are provided, while biopsy specimens are stored in their respective Pathology Departments. There is also follow-up data on all patients as well as biological materials collected and stored. [http://www.narechem.gr/node/7 Click here to learn more].
-'''Available type of information''': [[Data Dictionary: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST)]]. Annual crude and age-standardized [[availableVariable:: cancer incidence]] rates per 1,000,000; Annual age-standardized incidence rates (AIR) per 1,000,000 by [[availableVariable::tumor histology]]; Age-standardized incidence rates (AIR) per 1,000,000 by tumor histology and [[availableVariable::sex]]; Incidence Rates per 1,000,000 by [[availableVariable::age]] group and sex; Incidence Rates per 1,000,000 by age group and tumor histology; Number of cases by behavior
+'''Available type of information''': [[hasAvailableDataDictionary::Data Dictionary: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST)]].
-Age-standardized Incidence Rates (AIR) per 1,000,000 by behavior and gender; Annual Age-Standardized Incidence Rates (AIR) per 1,000,000 by behavior; Number of cases by [[availableVariable::diagnosis]] ICCC-3 group III histological subtype; Number of cases by tumor histology; Age-Standardized Incidence Rates (AIR) per 1,000,000 by sex and ICCC-3 group III histological subtype; Percentage of cases by [[availableVariable::tumor staging]]; Percentage of cases by anatomical stage, [[availableVariable::year]].
 '''Source of Information:''' Reports mainly from seven pediatric hematology-oncology departments across Greece, and personal interviews with children or their guardians.
@@ Line 17: / Line 16: @@
 '''Available data level:''' [[availableDataLevel::national level]].
-'''Number of Records:''' About 4000 patients.
+'''Number of records:''' About 4000 patients.
-'''Date Range:''' [[dataStart::1996]] to [[dataEnd::2019]].
+'''Date range:''' [[dataStart::1996]] to [[dataEnd::2019]].
-'''Cancer Areas of Interest:''' [[hasCancerAreasList::Cancer Areas of Interest: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST)|Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST)]].
+'''Cancer areas of interest:''' [[hasCancerAreasList::Cancer Areas of Interest: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST)|Nationwide Registry of Childhood Hematological Malignancies and Solid Tumors (NARECHEM-ST)]].
-'''Data access:''' [[dataAvailability::partially publicly available]] [http://www.narechem.gr/node/9]. Instructions to request data for restricted content [[hasDataAccessInstructions::[http://www.narechem.gr/node/13]]].
+'''Data access:''' [[dataAvailability::partially publicly available]]. [http://www.narechem.gr/node/9 Click here to access]. Instructions to request data for restricted content [[hasDataAccessInstructions::[http://www.narechem.gr/node/13 click here to access]]].
-'''Contact information:''' Information [http://www.narechem.gr/node/11].
+'''Contact information:''' [http://www.narechem.gr/node/11 Click here to access].