Data dictionary - Netherlands Cancer Registry (NKR)

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There are different types of variables available according to type of tumor and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumor, visit the data source.

Patient Records

Date of birth
Age at diagnosis
Sex
Country of birth
Date of death
Vital status with date
Patient number in the institution
Menopausal status at diagnosis
Postcode figures

Tumor Data

Tumor Data
Diagnosis date
Basis for diagnosis
Topography (incl. sublocalization/lateralization)
Morphology (incl. behavior/degree of differentiation)
Topography metastasis (incl. sublocalization)
Clinical TNM stage
Pathological TNM stage
Multifocality tumor
Pathological size of the tumor (mm)
Estrogen receptor status
Estrogen receptor value
Progesterone receptor status
Value of progesterone receptor
HER2 status
Technique used for HER2 determination
Number of regional lymph nodes examined
Number of positive regional lymph nodes
Presence of DCIS component next to invasive tumor
BI-RADS classification
Tumor palpability
Breast print rash
Result of oncotype DX

Treatment Details

Surgery
Date of surgery
Surgery discharge date
Tumor is an incidental finding during surgery for another indication
Hospital surgery
Direct reconstruction
Date of immediate reconstruction
Direct reconstruction technique
Hospital direct reconstruction
Axillary dissection performed
Date of axillary lymph node dissection
Hospital axillary dissection
Basic axillary dissection performed
Date of basal axillary lymph node dissection
Hospital of basal axillary dissection
Radiotherapy
Start/stop date of radiotherapy
Type of external radiotherapy
Hospital radiotherapy
Systemic chemotherapy
Start/stop date of systemic chemotherapy
Hospital systemic chemotherapy
Systemic hormonal therapy
Start date of systemic hormonal therapy
Hospital systemic hormonal therapy
Systemic target therapy
Start-stop date of systemic target therapy
Hospital systemic target therapy
Active surveillance
Radicality DCIS component surgery
Radicality invasive component surgery
No radiotherapy after breast-conserving treatment
Reason for no radiotherapy after breast-conserving treatment
Complication during/after surgery
Complication during/after systemic chemotherapy

Follow up Data

Recurrences within 5 years of diagnosis
Follow-up local recurrence
Date of follow-up local recurrence
Localization of follow-up local recurrence
Basis for diagnosis of follow-up local recurrence
Pathological tumor size (mm) follow-up local recurrence
Follow-up regional recurrence
Date of follow-up for regional recurrence
Localization of follow-up regional recurrence
Basis for diagnosis of follow-up regional recurrence
Number of regional lymph nodes examined for follow-up regional recurrence
Number of positive lymph nodes follow-up regionally
Follow-up metastasis
Date of follow-up metastasis
Basis for diagnosis follow-up metastasis
Topography (incl. sublocalization/lateralization) follow-up metastasis
Number of follow-up metastases
Treatment follow-up
Date of last contact follow-up
Relapses within 10 years of diagnosis
Follow-up local recurrence
Date of follow-up local recurrence
Follow-up regional recurrence
Date of follow-up for regional recurrence
Follow-up metastasis
Date of follow-up metastasis
Treatment follow-up
Relapses due to project
Follow-up local recurrence
Localization of local recurrence
Basis for diagnosis of local recurrence
Date of follow-up local recurrence
Pathological tumor size (mm) follow-up local recurrence
Follow-up regional recurrence
Localization of regional recurrence
Basis for diagnosis of regional recurrence
Date of follow-up for regional recurrence
Number of regional lymph nodes examined for follow-up regional recurrence
Number of positive lymph nodes follow-up regional recurrence
Follow-up metastasis
Localization of metastasis
Basis for diagnosis of metastasis
Date of follow-up metastasis
Number of follow-up metastases
ER, PR, Her2 recurrence or metastasis
Treatment follow-up

Risk Factors

Comorbidity
History of breast surgery
Smoking status
Pregnancy at diagnosis
Performance status
Weight
Length
Incidence year of previous/later malignancies
Tumor type previous/later malignancies

Process Data

Tumor detected after referral for population screening
Reason for diagnosis
Gene mutation research conducted
Date of gene mutation research
Hospital gene mutation research
MRI performed
MRI date
Hospital MRI
Ultrasound-guided puncture and/or biopsy performed in the armpit
Date of ultrasound-guided puncture and/or biopsy in the armpit
Result of ultrasound-guided puncture and/or biopsy in armpit
Hospital ultrasound-guided puncture and/or biopsy in the armpit
Post-therapeutic MDO performed
Date post-therapeutic MDO
Hospital post-therapeutic MDO
Pretherapeutic MDO performed
Date of pre-therapeutic MDO
Hospital pretherapeutic MDO
Sentinel lymph node procedure performed
Date of sentinel procedure
Result of sentinel procedure
Hospital sentinel procedure
Tumor localization procedure
MARI procedure performed
Date of MARI procedure
Result of MARI procedure
Hospital MARI procedure
Date of first consultation with plastic surgeon for ablation
Date of first consultation with radiotherapist for pre-surgical therapy
Hospital of first contact regarding malignancy
Date of first consultation in hospital
Date of first consultation with practitioner at second hospital
Participation in clinical scientific research
Operation with plastic surgeon