Database: Croatian National Cancer Registry (Croatia): Difference between revisions
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'''Sponsor, manager or home institution:''' [[dataOwner::Croatian Institute of Public Health (HZJZ)]]. | '''Sponsor, manager or home institution:''' [[dataOwner::Croatian Institute of Public Health (HZJZ)]]. | ||
'''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::cancer incidence]]; [[hasVariable::number of deaths]]; [[hasVariable::primary | '''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::cancer incidence]]; [[hasVariable::number of deaths]]; [[hasVariable::primary tumour localization]]; [[hasVariable::diagnosis]]; [[hasVariable::sex]]; [[hasVariable::age]]; [[hasVariable::year]]; | ||
[[hasVariable::place of residence]]. Data dictionary was not found. | [[hasVariable::place of residence]]. Data dictionary was not found. | ||
'''Available type of information:''' [[availableVariable::cancer incidence]] (number of new cases, percentage, crude incidence rate, standardized world incidence rate, cumulative rate from 0 - 74 years), [[availableVariable::number of deaths]], [[availableVariable::primary | '''Available type of information:''' [[availableVariable::cancer incidence]] (number of new cases, percentage, crude incidence rate, standardized world incidence rate, cumulative rate from 0 - 74 years), [[availableVariable::number of deaths]], [[availableVariable::primary tumour localization]], [[availableVariable::diagnosis]], [[availableVariable::sex]], [[availableVariable::age]], [[availableVariable::year]], [[availableVariable::place of residence]]. [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/publikacije-odjel-za-maligne-bolesti/ Click here to learn more]. | ||
'''Source of Information:''' Hospital report forms, primary care report forms, pathology and cytology reports, and death certificates. Additional data sources include hospital discharge diagnoses and outpatient visit diagnoses. | '''Source of Information:''' Hospital report forms, primary care report forms, pathology and cytology reports, and death certificates. Additional data sources include hospital discharge diagnoses and outpatient visit diagnoses. | ||
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'''Date range:''' [[dataStart::1959]] [[dataEnd::onwards]]. | '''Date range:''' [[dataStart::1959]] [[dataEnd::onwards]]. | ||
'''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. All cancers except non-melanoma skin cancer (C44), including carcinoma in situ and benign and borderline CNS | '''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. All cancers except non-melanoma skin cancer (C44), including carcinoma in situ and benign and borderline CNS tumours, [https://www.hzjz.hr/wp-content/uploads/2017/01/Bilten-Incidencija-raka-u-Hrvatskoj-2020.-godine.pdf click here to learn more]. | ||
'''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/publikacije-odjel-za-maligne-bolesti/ Click here to access]. Data can be downloaded in the formats [[hasDownloadableData::XLSX]] and [[hasDownloadableData::PDF]]. [[hasGrantRequirement::Data requires a grant proposal to be accessed]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/ click here to access]]]. | '''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/publikacije-odjel-za-maligne-bolesti/ Click here to access]. Data can be downloaded in the formats [[hasDownloadableData::XLSX]] and [[hasDownloadableData::PDF]]. [[hasGrantRequirement::Data requires a grant proposal to be accessed]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/ click here to access]]]. | ||
'''Contact information:''' [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/ Click here to access]. | '''Contact information:''' [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/ Click here to access]. | ||
Revision as of 00:44, 27 August 2024
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Type of database: registry.
Primary purpose: Register new cancer cases and provide data on incidence, prevalence, and survival in Croatia.
Sponsor, manager or home institution: Croatian Institute of Public Health (HZJZ).
Type of information: longitudinal. cancer incidence; number of deaths; primary tumour localization; diagnosis; sex; age; year; place of residence. Data dictionary was not found.
Available type of information: cancer incidence (number of new cases, percentage, crude incidence rate, standardized world incidence rate, cumulative rate from 0 - 74 years), number of deaths, primary tumour localization, diagnosis, sex, age, year, place of residence. Click here to learn more.
Source of Information: Hospital report forms, primary care report forms, pathology and cytology reports, and death certificates. Additional data sources include hospital discharge diagnoses and outpatient visit diagnoses.
Data level: patient level.
Available data level: regional level.
Number of Records: > 500,000 cancer incidence registries.
Date range: 1959 onwards.
Cancer Areas of Interest: C00-D48: All neoplasms. All cancers except non-melanoma skin cancer (C44), including carcinoma in situ and benign and borderline CNS tumours, click here to learn more.
Data access: partially publicly available. Click here to access. Data can be downloaded in the formats XLSX and PDF. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
