Data dictionary - Netherlands Cancer Registry (NKR): Difference between revisions
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Latest revision as of 17:40, 4 December 2025
Go back to Database: Netherlands Cancer Registry (NKR) (The Netherlands) page.
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There are different types of variables available according to type of tumour and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumour, visit the data source.
Patient Records[edit | edit source]
| Date of birth |
| Age at diagnosis |
| Sex |
| Country of birth |
| Date of death |
| Vital status with date |
| Patient number in the institution |
| Menopausal status at diagnosis |
| Postcode figures |
Tumour Data[edit | edit source]
| Diagnosis date |
| Basis for diagnosis |
| Topography (incl. sublocalization/lateralization) |
| Morphology (incl. behavior/degree of differentiation) |
| Topography metastasis (incl. sublocalization) |
| Clinical TNM stage |
| Pathological TNM stage |
| Multifocality tumour |
| Pathological size of the tumour (mm) |
| Estrogen receptor status |
| Estrogen receptor value |
| Progesterone receptor status |
| Value of progesterone receptor |
| HER2 status |
| Technique used for HER2 determination |
| Number of regional lymph nodes examined |
| Number of positive regional lymph nodes |
| Presence of DCIS component next to invasive tumour |
| BI-RADS classification |
| Tumour palpability |
| Breast print rash |
| Result of oncotype DX |
Treatment Details[edit | edit source]
| Surgery |
| Date of surgery |
| Surgery discharge date |
| Tumour is an incidental finding during surgery for another indication |
| Hospital surgery |
| Direct reconstruction |
| Date of immediate reconstruction |
| Direct reconstruction technique |
| Hospital direct reconstruction |
| Axillary dissection performed |
| Date of axillary lymph node dissection |
| Hospital axillary dissection |
| Basic axillary dissection performed |
| Date of basal axillary lymph node dissection |
| Hospital of basal axillary dissection |
| Radiotherapy |
| Start/stop date of radiotherapy |
| Type of external radiotherapy |
| Hospital radiotherapy |
| Systemic chemotherapy |
| Start/stop date of systemic chemotherapy |
| Hospital systemic chemotherapy |
| Systemic hormonal therapy |
| Start date of systemic hormonal therapy |
| Hospital systemic hormonal therapy |
| Systemic target therapy |
| Start-stop date of systemic target therapy |
| Hospital systemic target therapy |
| Active surveillance |
| Radicality DCIS component surgery |
| Radicality invasive component surgery |
| No radiotherapy after breast-conserving treatment |
| Reason for no radiotherapy after breast-conserving treatment |
| Complication during/after surgery |
| Complication during/after systemic chemotherapy |
Follow up Data[edit | edit source]
| Recurrences within 5 years of diagnosis |
| Follow-up local recurrence |
| Date of follow-up local recurrence |
| Localization of follow-up local recurrence |
| Basis for diagnosis of follow-up local recurrence |
| Pathological tumour size (mm) follow-up local recurrence |
| Follow-up regional recurrence |
| Date of follow-up for regional recurrence |
| Localization of follow-up regional recurrence |
| Basis for diagnosis of follow-up regional recurrence |
| Number of regional lymph nodes examined for follow-up regional recurrence |
| Number of positive lymph nodes follow-up regionally |
| Follow-up metastasis |
| Date of follow-up metastasis |
| Basis for diagnosis follow-up metastasis |
| Topography (incl. sublocalization/lateralization) follow-up metastasis |
| Number of follow-up metastases |
| Treatment follow-up |
| Date of last contact follow-up |
| Relapses within 10 years of diagnosis |
| Follow-up local recurrence |
| Date of follow-up local recurrence |
| Follow-up regional recurrence |
| Date of follow-up for regional recurrence |
| Follow-up metastasis |
| Date of follow-up metastasis |
| Treatment follow-up |
| Relapses due to project |
| Follow-up local recurrence |
| Localization of local recurrence |
| Basis for diagnosis of local recurrence |
| Date of follow-up local recurrence |
| Pathological tumour size (mm) follow-up local recurrence |
| Follow-up regional recurrence |
| Localization of regional recurrence |
| Basis for diagnosis of regional recurrence |
| Date of follow-up for regional recurrence |
| Number of regional lymph nodes examined for follow-up regional recurrence |
| Number of positive lymph nodes follow-up regional recurrence |
| Follow-up metastasis |
| Localization of metastasis |
| Basis for diagnosis of metastasis |
| Date of follow-up metastasis |
| Number of follow-up metastases |
| ER, PR, Her2 recurrence or metastasis |
| Treatment follow-up |
Risk Factors[edit | edit source]
| Comorbidity |
| History of breast surgery |
| Smoking status |
| Pregnancy at diagnosis |
| Performance status |
| Weight |
| Length |
| Incidence year of previous/later malignancies |
| Tumour type previous/later malignancies |
Process Data[edit | edit source]
| Tumour detected after referral for population screening |
| Reason for diagnosis |
| Gene mutation research conducted |
| Date of gene mutation research |
| Hospital gene mutation research |
| MRI performed |
| MRI date |
| Hospital MRI |
| Ultrasound-guided puncture and/or biopsy performed in the armpit |
| Date of ultrasound-guided puncture and/or biopsy in the armpit |
| Result of ultrasound-guided puncture and/or biopsy in armpit |
| Hospital ultrasound-guided puncture and/or biopsy in the armpit |
| Post-therapeutic MDO performed |
| Date post-therapeutic MDO |
| Hospital post-therapeutic MDO |
| Pretherapeutic MDO performed |
| Date of pre-therapeutic MDO |
| Hospital pretherapeutic MDO |
| Sentinel lymph node procedure performed |
| Date of sentinel procedure |
| Result of sentinel procedure |
| Hospital sentinel procedure |
| Tumour localization procedure |
| MARI procedure performed |
| Date of MARI procedure |
| Result of MARI procedure |
| Hospital MARI procedure |
| Date of first consultation with plastic surgeon for ablation |
| Date of first consultation with radiotherapist for pre-surgical therapy |
| Hospital of first contact regarding malignancy |
| Date of first consultation in hospital |
| Date of first consultation with practitioner at second hospital |
| Participation in clinical scientific research |
| Operation with plastic surgeon |
