Database: Andmebaas Cancer Screening Registry (Estonia)

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Type of database: registry.

Primary purpose: The register collects and analyzes personalized data about the target group of breast, cervical and colon cancer screenings.

Sponsor, manager or home institution: The Health Statistics and Health Research Database; The National Institute for Health Development.

Type of information: longitudinal. screening, sex, age, place of residence, year. Data dictionary could not be found for this database. Data of people belonging to the target group of screening studies; Screened research participation data and the results of the basic and additional studies performed, click here to learn more.

Available type of information: screening, sex, age, place of residence, year. Click here to access.

Source of Information: The register collects data from health service providers through electronic mass requests through the health information system. Data is also inherited from the population register, the cause of death register, the cancer register and the health insurance data set of the health insurance fund via the X-tee data exchange layer.

Data level: patient level.

Available data level: regional level.

Number of Records: unknown.

Date range: 2015 onwards.

Cancer areas of interest: C15-C26: Digestive system cancers, C50: Breast cancer, and C51-C58: Female genitalia cancer. Click here to learn more.

Data access: partially publicly available. Click here to access, go to "Morbidity" > "Cancer screening programmes". Data can be downloaded in the formats XLSX; CSV; PX; XML; JPG and JSON. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

Esophagus Stomach Small intestine Large intestine Rectum Anus Liver Gallbladder Bile ducts Pancreas Colon Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium databaseType::registry dataOwner::The Health Statistics and Health Research Database dataOwner::The National Institute for Health Development databaseStructure::longitudinal hasVariable::screening hasVariable::sex hasVariable::age hasVariable::place of residence hasVariable::year availableVariable::screening availableVariable::sex availableVariable::age availableVariable::place of residence availableVariable::year dataLevel::patient level availableDataLevel::regional level numberRecords::unknown dataStart::2015 dataEnd::onwards hasCancerType::C15-C26: Digestive system cancers hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancer dataAvailability::partially publicly available hasDownloadableData::XLSX hasDownloadableData::CSV hasDownloadableData::PX hasDownloadableData::XML hasDownloadableData::JPG hasDownloadableData::JSON hasDataAccessInstructions::[https://www.tai.ee/et/kontakt/isikuandmete-paring click here to access isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown