Database: ZfKD Cancer Registry (Germany)

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Type of database: registry.

Primary purpose: Collect and compile epidemiological cancer data from state cancer registries at the federal level.

Sponsor, manager or home institution: Zentrum für Krebsregisterdaten.

Type of information: longitudinal. sex; age; diagnosis; year; place of residence; medical procedures; tumour histology; tumour staging; primary tumour localization; check-up examinations. To see the full data dictionary click here to learn more.

Data Dictionary: ZfkD Cancer Registry

Available type of information: cancer incidence, cancer prevalence, causes of death, cancer survival, number of deaths, case numbers, crude rate, and age-standardized rate, filtered by diagnosis, age, sex, and year.

Source of Information: Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries. Click here to learn more.

Data level: patient level.

Available data level: national level.

Number of records: unknown.

Date range: 1999 onwards.

Cancer areas of interest: C00-C97: All cancer types. See the full list of cancer types:

ZfKD Cancer Registry.

Click here to learn more.

Data access: partially publicly available. Click here to access. Data can be downloaded in the formats XLS and CSV. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Zentrum für Krebsregisterdaten databaseStructure::longitudinal hasVariable::sex hasVariable::age hasVariable::diagnosis hasVariable::year hasVariable::place of residence hasVariable::medical procedures hasVariable::tumour histology hasVariable::tumour staging hasVariable::primary tumour localization hasVariable::check-up examinations hasDataDictionary::Data Dictionary: ZfkD Cancer Registry (Germany)|Data Dictionary: ZfkD Cancer Registry availableVariable::cancer incidence availableVariable::cancer prevalence availableVariable::causes of death availableVariable::cancer survival availableVariable::number of deaths availableVariable::diagnosis availableVariable::age availableVariable::sex availableVariable::year dataLevel::patient level availableDataLevel::national level numberRecords::unknown dataStart::1999 dataEnd::onwards dataAvailability::partially publicly available hasDownloadableData::XLS hasDownloadableData::CSV hasGrantRequirement::Data requires a grant proposal to be accessed hasDataAccessInstructions::[https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Info_antrag/info_antrag_node.html click here to access isDatabase hasCancerType::C00-C97: All cancer types hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasDataAccessInstructions::[https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Informationen_Antragstellung/info_antrag_node.html click here to access Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine