Croatia: Difference between revisions

From Beacon
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=== Cancer Registry ===
=== Cancer Registry ===


'''Sponsor, manager or home institution:''' National Institute of Public Health.
'''Primary purpose:''' Register cancer frequency and mortality in Croatia.


'''Sponsor, manager or home institution:''' Croatian Institute of Public Health.


2. Type of information.
'''Type of information:''' Discharged patients and out-of-hospital reports of malignant neoplasm,
registers of cancer death.


Information included in the database. Examples: patient name, identification number, gender, date of birth, place of birth, residence, marital status, nationality, primary site, date of diagnosis, confirmation methods of diagnosis, tumour morphology and grade, extent of disease, primary treatment (surgery, radiotherapy, cytostatic chemotherapy, hormone therapy, other treatment), follow-up data (date of death or emigration) and cause of death, source of information.
'''Source of Information:''' Reports from health institutions and private practice health workers. The mortality database is sent from the State Statistics Office and the Croatian Institute of Public Health data from the
Patient Statistical Forms on magnetic media obtained from the Department of Health
Care and Hospital Health Care of the Croatian Institute of Public Health.


Variant: Available type of information.
'''Data level:''' Patient level.


The same as "Type of information", but only describe information publicly available. If you have the type of information for both the complete database and the partially available database, describe both.
'''Number of Records:''' Unknown.


3. Source of Information.
'''Date Range:''' Unknown.


How the information on the database was collected.
'''Cancer Areas of Interest:''' Unknown.


'''Open data access:''' Data is not open to access.


4. Data level.
'''Information/Contact for data request:''' [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/ Instructions to access data here.]
 
Patient, hospital, regional, or national level. If patient level, the database will display information about a specific patient. If hospital level, the database will display information about a specific hospital, but not about specific patients. And so on.
 
Variant: Available data level.
 
The same as "Data level", but for the partially available database. If you have the data level for both the complete database and the partially available database, describe both.
 
 
5. Number of Records.
 
Number of patients recorded in the database.
 
 
6. Date Range.
 
First and last year the database covers. If the database is frequently updated, write "YYYY onwards"
 
 
7. Cancer Areas of Interest.
 
Describe what cancer areas are covered by the database. Example: Lip, oral cavity and pharynx; Digestive organs; Respiratory and intrathoracic organs. If a specific cancer definition is used (such as the ICD definitions), mention that.
 
 
8. Open data access.
 
Inform if the data is fully open, partially open, or not publicly available in any way. Add a link to the open data if there is one.
 
 
9. Information/Contact for data request.
 
A link to a page where a researcher can request access to the full database. If not available, a page where the researcher can find more information about how to access the data.


== [[Clinical Study Databases]] ==
== [[Clinical Study Databases]] ==

Revision as of 23:54, 15 December 2022

Cancer Centers

Healthcare System

Croatia has a mandatory health insurance system, with the Croatian Health Insurance Fund (CHIF) being its sole insurer and main purchaser. Additional, voluntary health insurance can be purchased individually from the CHIF or private insurers to cover co-payments for services in the benefit package, with over 60% of the population opting for this additional insurance. The main regulatory body of the Croatian health system is the Ministry of Health.

The National Public Health Information System of the Croatian Institute of Public Health (CIPH) collects data for various registries, including a cancer registry. The Central Health Information System, on the other hand, is managed by CHIF and is used to share standardized health data to support delivery of primary, secondary and tertiary healthcare. [1]

Administrative or Claims Data

Registries

Cancer Registry

Primary purpose: Register cancer frequency and mortality in Croatia.

Sponsor, manager or home institution: Croatian Institute of Public Health.

Type of information: Discharged patients and out-of-hospital reports of malignant neoplasm, registers of cancer death.

Source of Information: Reports from health institutions and private practice health workers. The mortality database is sent from the State Statistics Office and the Croatian Institute of Public Health data from the Patient Statistical Forms on magnetic media obtained from the Department of Health Care and Hospital Health Care of the Croatian Institute of Public Health.

Data level: Patient level.

Number of Records: Unknown.

Date Range: Unknown.

Cancer Areas of Interest: Unknown.

Open data access: Data is not open to access.

Information/Contact for data request: Instructions to access data here.

Clinical Study Databases

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives

Cancer-related Patient Associations

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