Germany: Difference between revisions
| Line 10: | Line 10: | ||
== [[Registries]] == | == [[Registries]] == | ||
=== Database: Cause of Death Registry === | |||
'''Sponsor, manager or home institution:''' Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder (FDZ) | |||
'''Primary purpose:''' Cause of death statistics database is used to compile information about cause of death from german citizens. | |||
'''Type of information:''' Data dictionary, methodology, and other information about the contents of the survey database can be found [https://www.forschungsdatenzentrum.de/de/10-21242-23211-2020-00-00-1-1-0 here]. | |||
'''Source of Information:''' The data are based on the death certificates issued as part of the coroner's inquest. | |||
'''Data level:''' Patient level. | |||
'''Number of Records:''' Unknown. | |||
'''Date Range:''' 1992 to 2020. | |||
'''Cancer Areas of Interest:''' Neologisms (C00 – D48) | |||
'''Open data access:''' Data is not openly available. More information about the database can be found [https://www.forschungsdatenzentrum.de/de/gesundheit/todesursachen here]. Information on how to access the data can be found [https://www.forschungsdatenzentrum.de/en/request here] and [https://www.forschungsdatenzentrum.de/en/access here]. | |||
'''Information/Contact for data request:''' Contact information can be found in the bottom of the page or [https://www.forschungsdatenzentrum.de/en/contact here]. | |||
== [[Databases for Clinical Trials, Surveys and Biobanks]] == | == [[Databases for Clinical Trials, Surveys and Biobanks]] == | ||
Revision as of 20:41, 16 February 2023
Cancer Centers
Healthcare System
The Statutory Health Insurance (SHI) is a compulsory health insurance system that covers 90% of the population, consisting of 110 privately-run and not-for-profit sickness funds that act as third-party payers. The services provided by these sickness funds are decided by the Federal Joint Committee, which in turn is supervised by the Ministry of Health, and all sickness funds are represented by the National Association of Statutory Health Insurance Funds. Payment for the insurance is either discounted from the salary, or from the governmental benefits or allowances a person may receive. Their children and non-working spouses are also covered at no additional cost. You can opt for a Private Health Insurance (PHI) instead if your income is superior to 66,600 Euros (as of 2023), you’re self-employed or a civil servant. That does not include supplementary PHIs.
The main body responsible for health monitoring in Germany is the Robert Koch Institute (RKI), whereas the Federal Statistics Office (Destatis) is the data holder for many health-related statistics, including hospital statistics and cause of death statistics.
Administrative or Claims Data
Registries
Database: Cause of Death Registry
Sponsor, manager or home institution: Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder (FDZ)
Primary purpose: Cause of death statistics database is used to compile information about cause of death from german citizens.
Type of information: Data dictionary, methodology, and other information about the contents of the survey database can be found here.
Source of Information: The data are based on the death certificates issued as part of the coroner's inquest.
Data level: Patient level.
Number of Records: Unknown.
Date Range: 1992 to 2020.
Cancer Areas of Interest: Neologisms (C00 – D48)
Open data access: Data is not openly available. More information about the database can be found here. Information on how to access the data can be found here and here.
Information/Contact for data request: Contact information can be found in the bottom of the page or here.
Databases for Clinical Trials, Surveys and Biobanks
Database: Diagnosis Related Groups (DRG) Survey
Sponsor, manager or home institution: Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder (FDZ)
Primary purpose: The Diagnosis Related Groups (DRG) statistic is a full annual census of all inpatient hospital cases within Germany that are billed according to case flat rates.
Type of information: Data dictionary, methodology, and other information about the contents of the survey database can be found here.
Source of Information: Hospitals send information to the Hospital Remuneration System (InEK)
Data level: Patient level.
Number of Records: 16.359.312 patients, of which 1.775.648 (10,85%)
Date Range: 2005 to 2020.
Cancer Areas of Interest: Neologisms (C00 – D48)
Open data access: Data is not openly available. More information about the database can be found here. Information on how to access the data can be found here and here.
Information/Contact for data request: Contact information can be found in the bottom of the page or here.
Electronic Health Records
Clinical Practices Guidelines
Latest Policymaking Initiatives
Report: National Association of Statutory Health Insurance Annual Reports
Sponsor, manager or home institution: The National Association of Statutory Health Insurance Funds
Primary purpose:' Provide an overview of plans created and actions taken during a year by the association.
Type of information: Discussions on policies, guidelines and plans relevant to the report's year. For the latest publication (2021), there are discussions on the participation of the association on the "Europe's Beating Cancer Plan", as well as an update on the results of the Cancer Registry Data Act.
'Level: National level.
Access to information: Information can be found here.
Compilation: Documents regarding Cancer Registry legislation
Sponsor, manager or home institution: The National Association of Statutory Health Insurance Funds
Primary purpose:' Offer information about Cancer Registry legislation and current status.
Type of information: Legislation, reports, expert opinions, and other documents regarding the current status of the efforts to create systematic and uniform cancer registries.
'Level: National level.
Access to information: Information can be found here.
