forresearchers
greececountry
Go back to Greece page
Type of database: registry, biobank.
Primary purpose: Provide information about cancer incidence in children (0-14 years old) across Greece.
Sponsor, manager or home institution: NARECHEM-ST.
Type of information: longitudinal. Data dictionary has not been found. It includes demographic data, personal and family history of the primary child, sex, age, year; confirmed diagnosis, tumour morphology and localization, stage, metastases, and cancer survival. Moreover, biological samples are accessible for the majority of cases and controls. If applicable, bone marrow aspiration slides and biopsy reports are provided, while biopsy specimens are stored in their respective Pathology Departments. There is also follow-up data on all patients as well as biological materials collected and stored.
Available type of information: age; sex; diagnosis; tumour histology; tumour staging; cancer incidence; year.
Data Dictionary: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST).
Source of Information: Reports mainly from seven pediatric hematology-oncology departments across Greece, and personal interviews with children or their guardians.
Data level: patient level.
Available data level: national level.
Number of records: About 4000 patients.
Date range: 1996 to 2019.
Cancer areas of interest: C15-C26: Digestive system cancers; C64-C68: Urinary system cancers; C69-C72: Eye and brain cancer; C73-C75: Thyroid and other gland cancers; C81-C96: Cancers of the blood and immune system. See the full list of cancer types:
Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST).
Data access: partially publicly available. Data can be downloaded in the JPG format. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
Esophagus
Stomach
Small intestine
Large intestine
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Colon
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
databaseType::biobank
dataOwner::NARECHEM-ST
databaseStructure::longitudinal
hasVariable::sex
hasVariable::age
hasVariable::year
hasVariable::diagnosis
hasVariable::tumour histology|localization
hasVariable::tumour staging|stage
hasVariable::cancer survival
availableVariable::age
availableVariable::sex
availableVariable::diagnosis
availableVariable::tumour histology
availableVariable::tumour staging
availableVariable::cancer incidence
availableVariable::year
hasAvailableDataDictionary::Data Dictionary: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST)
dataLevel::patient level
availableDataLevel::national level
dataStart::1996
dataEnd::2019
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C81-C96: Cancers of the blood and immune system
dataAvailability::partially publicly available
hasDownloadableData::JPG
hasGrantRequirement::Data requires a grant proposal to be accessed
hasDataAccessInstructions::[http://www.narechem.gr/node/13 click here to access
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
