Database: Socialstyrelsen Cause of Death Registry (Sweden)

Sponsor, manager or home institution: Socialstyrelsen.

Primary purpose: To describe the causes of death and track mortality trends in Sweden.

Type of information: Data Dictionary: Socialstyrelsen Cause of Death Registry. Full list of variables [1].

Available type of information: Number of deaths; Deaths rates and deaths by 100,000 people; Diagnosis; age; sex and region.

Source of Information: The death certificates are sent by doctors to the Tax Agency or the Police, and then are sent to the Socialstyrelsen.

Data level: patient level.

Available data level: regional level and national level.

Number of Records: Around 90,000 people per year.

Date Range: 1969 onwards.

Cancer Areas of Interest: neoplasms (C00-D48).

Data access: partially publicly available. Data from 1969 to 1996 information [2] and data from 1997 onwards information [3]. Instructions to request data for restricted content [4].

Contact information: Information [5].