Database: Socialstyrelsen Cancer Registry (Sweden)

Sponsor, manager or home institution: Socialstyrelsen.

Primary purpose: To map the occurrence and change of cancer diseases over time.

Type of information: Data Dictionary: Socialstyrelsen Cancer Registry. Full list of variables [1].

Available type of information: number of diagnostics; Cases per 100,000; cancer incidence; age; sex; diagnosis, and year.

Source of Information: The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually.

Data level: patient level.

Available data level: regional level and national level.

Number of Records: 60,000 cases registered every year [2].

Date Range: 1970 onwards.

Cancer Areas of Interest: neoplasms (C00-D48).

Data access: partially publicly available [3]. Instructions to request data for restricted content [4].

Contact information: Information [5].