Database: German Childhood Cancer Registry (DKKR) (Germany)

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Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.

Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.

Type of information: Incidence of children with cancer by age and cancer type.

Source of Information: Information about GPOH study patients is sent to the DKKR [1].

Data level: national level.

Number of Records: Covers more than 95% of the population.

Date Range: 1980 onwards.

Cancer Areas of Interest: Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors.

Open data access: partially publicly available [2], [3]. Instructions to request data for restricted content [4].

Contact information: Information [5].