Data Dictionary: Belgian Cancer Registry

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Patient Information and Treatment Data
Variable Description
Unique patient identification including demographic parameters (i.e., date of birth, gender, zip code) and unique identification of the care program and hospital
Diagnosis according to international classification including date of incidence
Tumor stage (cTNM)
Conclusion of the pathological report (including pTNM)
Treatment with reference to guidelines or justification of deviation
Follow-up plan
Side effects
Disease-free survival and survival (i.e., treatment outcome)
Date of death


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Screening Variables
Aspects of Participation and Screening Test Usage
Aspects of participation
Use of the screening test in the target group
Results obtained and their use (including cancer detection rate, sensitivity, and specificity)
Cyto-histopathology register
Results of further follow-up