Germany
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Cancer Centers
Healthcare System
Administrative or Claims Data
Registries
Database: ZfKD Cancer Registry
Database: Cause of Death Registry
Database: German Childhood Cancer Registry (DKKR)
Databases for Clinical Trials, Surveys and Biobanks
Clinical Practices Guidelines
Latest Policymaking Initiatives
Report: Cancer in Germany
Sponsor, manager or home institution: A collaboration between the Gesellschaft der epidemiologischen Krebsregister e.V. (GEKID) and the Zentrums für Krebsregisterdaten (ZfKD) by the Robert Koch Institute.
Primary purpose: Provides epidemiological indicators and current trends for a total of 30 different types of cancer.
Type of information: Incidence of disease and mortality, regional and international comparisons, as well as representations of the distribution of tumor stages and the prospects of survival.
Data level: National and regional level.
Access to information: Access information [1].
Report: National Association of Statutory Health Insurance Annual Reports
Sponsor, manager or home institution: The National Association of Statutory Health Insurance Funds.
Primary purpose: Provide an overview of plans created and actions taken during a year by the association.
Type of information: Discussions on policies, guidelines, and plans relevant to the report's year. For the latest publication (2021), there are discussions on the participation of the association in "Europe's Beating Cancer Plan", as well as an update on the results of the Cancer Registry Data Act.
Data level: National level.
Access to information: Access information [2].
Compilation: Documents regarding Cancer Registry legislation
Sponsor, manager or home institution: The National Association of Statutory Health Insurance Funds.
Primary purpose: Offer information about Cancer Registry legislation and current status.
Type of information: Legislation, reports, expert opinions, and other documents regarding the current status of the efforts to create systematic and uniform cancer registries.
Data level: National level.
Access to information: Access information [3].
Reports: Occurrence of Cancer in German
Sponsor, manager or home institution: Robert Koch Institut; Das Zentrum für Krebsregister.
Primary purpose: To provide comprehensive and up-to-date information on cancer incidence, patient care, prevention, early detection, and research needs in Germany, presenting important facts and figures to support further understanding and analysis.
Type of information: Number of new cancer cases and deaths; Incidence rates for all cancers; Overview of epidemiological and health care indicators after cancer; Inpatient treatment cancer cases; Treatment cases in prevention and rehabilitation facilities; Diagnoses of neoplasms in patients from the hospice and palliative care survey; Relative 5-year survival after cancer diagnosis; Years of life lost to cancer; Knowledge and regular use of the cancer screening tests; Regular utilization of cancer screening tests among beneficiaries; Participation in statutory screening tests.
Data level: National level.
Access to information: Access Information [4].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [5].
Initiative: National Decade against Cancer
Sponsor, manager or home institution: Federal Ministry of Education and Research (BMBF); Federal Ministry of Health and many other partners.
Primary purpose: To mobilize key players in Germany to collaborate on cancer research, involving patients closely, accelerating innovations, and ultimately reducing the incidence of cancer, improving early diagnosis, and developing better treatments.
Data level: National level.
Access to information: Access Information [6]. Survey: National Decade against Cancer.
Compilation: Patient Guidelines
Sponsor, manager or home institution: European Society for Medical Oncology.
Primary purpose: Inform cancer patients about their condition using the results of the latest medical research.
Available guides: Cancer Therapy During the COVID-19 Pandemic; Immunotherapy related side effects and their management; Survivorship; Cancer pain; Multiple Myelom.
Type of information: Information about cancer, diagnosis, treatment, supportive care, advice, and literature on the subject. There are guidelines about multiple cancer types as well as other information such as supportive care guidelines.
Access to information: List of guides [7].
Compilation: Self-help Groups and Initiatives
Sponsor, manager or home institution: Charité Comprehensive Cancer Center.
Primary purpose: To support cancer self-help groups and initiatives through cooperation, information, and resources.
Available guides and informations: National contact points for self-help; Regional self-help contact points; Cancer counseling in general; Psychosocial Support; Other languages informations; Prevention; Relatives of cancer patients; Parents of children with cancer; Women and cancer; Young people and cancer; Children and cancer; Men and cancer; After Cancer; Employment And Cancer; Self-Help Creative; Bereavement Groups; Peritoneum; Pancreas; Bladder; Blood; Breast; Colon; Ovary, Fallopian Tube And Uterus And Other Gynecological Tumors; Hereditary Tumor Disease | Familial Tumor Diseases | Genetic Tumor Diseases; Fatigue; Brain; Skin; Testicles; Head - Neck - Larynx - Face - Mouth; Leukemia; Lung; Lymphomas / Non-Hodgkin Lymphomas / Myelomas; Stomach; Neuroendocrine Tumors (Net, Gep); Kidney; Prostate; Sarcomas; Thyroid; Urological Tumors; Vhl - Hippel-Lindau Disease; Vulva.
Type of information: The support groups for people with cancer and their relatives; how to find the support groups; The different types of support groups available; The self-help group and association by type of cancer; Cancer counselings; A list of resources, such as websites, phone numbers, and addresses of support groups in the area.
Access to information: List of guides and informations [8].
Patient Association: Deutsche Krebshilfe (DKH)
Sponsor, manager or home institution: German Cancer Aid.
Primary purpose: To fight cancer in all its manifestations through research, support, and information.
Access to information: Information [9].
Patient Association: Berlin Cancer Society
Sponsor, manager or home institution: Berliner Krebsgesellschaft.
Primary purpose: To provide support and advocacy to people with cancer and their families.
Access to information: Information [10].
Resource: Krebsinformationsdienst
Primary purpose: To provide individuals affected by cancer with up-to-date knowledge, support, and individualized information while offering independent, quality-assured information for professionals involved in cancer care.
Access to information: Information [11].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [12] and Palliative Care [13].
