Slovenia
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Cancer Centers
Healthcare System
Administrative or Claims Data
Database: SiStat Death
Database: NIJZ Sick Leave
Database: NIJZ Outpatient Health (ZUBSTAT)
Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB)
Database: NIJZ Healthcare Providers
Database: NIJZ Hospital Beds
Database: NIJZ Medical Devices
Database: ZZZS Number of treatments by healthcare provider
Database: ZZZS Planned Number of Teams
Database: ZZZS Planned and Implemented Health Services
Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer
Registries
Database: Slovenian Cancer Registry
Database: The Svit Programme - Colorectal Cancer Screening Programme
Database: DORA Breast Cancer Screening Registry
Database: Cervical Cancer Screening Registry ZORA
Clinical Practices Guidelines
Onko Guidelines
Zora: Professional recommendations and guidelines
Sponsor, manager or home institution: ZORA Program and others according to the guideline.
Primary purpose: To offer healthcare professionals access to updated national expert recommendations and guidelines.
Type of information: Guidelines for cytological findings of cervical smears; Recommendations for comprehensive treatment of women with cervical cancer in Slovenia; Procedures for comprehensive treatment of women with cervical cancer in Slovenia; Guidelines for the standardization of procedures and histopathological findings in the field of gynecological pathology - cervical neoplasia and others.
Access to information: List of guidelines [1].
Latest Policymaking Initiatives
Reports: Slovenian Cancer Registry
Sponsor, manager or home institution: Register raka Republike Slovenije.
Primary purpose: To collect and process data on cancer incidence and patients' survival, being one of the oldest population-based cancer registries in Europe, and a member of the International Association of Cancer Registries and the European Network of Cancer Registries.
Type of information: The most common cancers; Cancer survive; Cancer incidence; Cancer prevalence and mortality; Number and proportions of patients who were operated on, treated with systemic treatment or irradiated; Number of patients who fell ill in and underwent surgery; Number of patients who received systemic treatment or therapy.
Data level: National level.
Access to information: Access Information [2].
Reports: ZORA Program
Sponsor, manager or home institution: Ljubljana Oncology Institute; ZORA Program.
Primary purpose: To actively screen and reduce morbidity and mortality from cervical cancer in Slovenia, aiming for at least 70% coverage of women aged 20-64 through regular cervical smear examinations every three years.
Type of information: The percentage of women in the target group who are screened according to the program guidelines (screening); The number of new patients in a given year; (RMV incidence rate); Mortality due to RMV; The ratio between the number of newly detected precancerous and cancerous changes per year.
Data level: National level.
Access to information: Access Information [3].
Reports: DORA Program
Sponsor, manager or home institution: Ljubljana Oncology Institute; DORA Program.
Primary purpose: The early detection of breast cancer among women aged 50 to 69 in Slovenia, aiming to reduce breast cancer mortality by 25 to 30 percent through regular screening mammography and informed participation.
Type of information: Coverage and participation of the DORA Program; Number of breast screenings; Cancers detected in the screening program.
Data level: National level.
Access to information: Access Information > To access annual reports, go to DORA program reports [4].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [5].
Patient Association: The Association of Oncology Patients of Slovenia
Primary purpose: To support and advocate for cancer patients, promote holistic treatment, provide voluntary assistance, disseminate knowledge about cancer and health, emphasize active patient participation in treatment and rehabilitation, and protect patients' rights.
Contact Information: Information [6].
Patient Association: Europa Donna – Slovenian association for the fight against breast cancer
Primary purpose: To support and advocate for comprehensive care, early detection, and awareness of breast and genital cancer, while also promoting a healthy lifestyle and patients' rights.
Contact Information: Information [7].
ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology (ESMO).
Primary purpose: Provide patients, their relatives and caregivers guides to better understand complex medical information about different types of cancer.
Available guides: Cancer Treatment During the COVID-19 Pandemic; Side Effects Associated with Immunotherapy and Their Management; Personalized Medicine in Oncology; Life with Cancer; Breast Cancer; Ovarian Cancer; Cervical Cancer.
Type of information: Laymen-directed descriptions of specific cancers, their causes, diagnoses, treatment, screening, and side effects, among other relevant information for patients, their relatives and caregivers.
Access to information: Patient Guides [8].
