Data dictionary: Lung cancer - DLCA
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Surgery - DLCA-S
Table 1: Healthcare Institution Information
| Variables | Description |
|---|---|
| Zorginstelling | Healthcare Institution |
| Uniek Patiëntnummer | Unique Patient Number |
| Geboortedatum | Date of Birth |
| Geslacht | Gender |
| Datum overlijden | Date of Death (if applicable) |
Table 2: Patient Health and Comorbidities
| Variables | Description |
|---|---|
| Datum comorbiditeiten | Comorbidities Date |
| Chronische longziekte | Chronic Lung Disease |
| COPD/ CARA/ emfyseem/ chron. bronch. | COPD/ CARA/ Emphysema/ Chronic Bronchitis |
| Longfibrose | Lung Fibrosis |
| Status na longtransplantatie | Status After Lung Transplantation |
| Angina pectoris, Myocardinfarct, PTCA, CABG, Kleplijden, Klepvervanging | Angina Pectoris, Myocardial Infarction, PTCA, CABG, Valve Disease, Valve Replacement |
| Atriumfibrilleren/-flutter, Hartritmestoornis | Atrial Fibrillation/Flutter, Heart Rhythm Disorder |
| Decompensatio cordis, Congestief hartfalen | Heart Failure |
| Perifeer vaatlijden/aneurysma aorta | Peripheral Vascular Disease/Aortic Aneurysm |
| Hypertensie | Hypertension |
| Carotis stenose | Carotid Stenosis |
| DVT/trombosebeen, Longembolie | DVT/Thrombophlebitis, Pulmonary Embolism |
Table 3: Cancer and Tumor Information
| Variables | Description |
|---|---|
| Type tumor, Locatie tumor, Diameter tumor | Type of Tumor, Location of Tumor, Tumor Diameter |
| Is er naast de primaire tumor sprake van (een) separate tumornodus/noduli | Presence of Separate Tumor Nodules |
| Geaggregeerd pathologisch T-stadium, N-stadium, M-stadium | Pathological T-stage, N-stage, M-stage |
Table 4: Surgical Details
| Variables | Description |
|---|---|
| Datum van verrichting, Kies verrichting, Zijde | Surgery Date, Type of Procedure, Side of Operation |
| Eerdere longresectie(s) middels een thoraxoperatie? | Previous Lung Resections via Thoracic Surgery |
| ECOG performance status | ECOG Performance Status |
| Predicted FEV1 %, DLCO SB %, VO2 max ml/kg/min | Predicted FEV1 %, DLCO SB %, VO2 max |
Table 5: Diagnostic Imaging and Biopsy
| Variables | Description |
|---|---|
| Is er een CT-scan verricht?, Is er een PET-scan verricht?, Datum laatste CT-scan of PET-CT-scan | CT Scan, PET Scan Dates and Findings |
| Is er een EUS verricht?, Is er een EBUS verricht?, Is er een mediastinoscopie/-tomie verricht? | EUS, EBUS, Mediastinoscopy |
Table 6: Treatment and Complications
| Variables | Description |
|---|---|
| Werd de patiënt voor de operatie systemisch of radiotherapeutisch behandeld?, Chemotherapie, Radiotherapie | Treatment Prior to Surgery, Treatment Post-Surgery |
| Toegang thorax, Reden voor conversie | Surgical Approach and Conversion Reason |
| Complicaties binnen 30 dagen na resectie?, Ernst van de complicatie | Postoperative Complications, Their Severity |
Carcinoma DLCA-L
Table 7:Patient and Care Center Information.
| Variables | Description |
|---|---|
| Zorginstelling | Organisation Name |
| Uniek Patiëntnummer | Unique Patient Number |
| Geboortedatum | Date of Birth |
| Geslacht | Gender |
| Datum overlijden | Date of Death (if applicable) |
Table 8: Disease Nature and Diagnosis.
| Variables | Description |
|---|---|
| Wat is de vermeende aard van de ziekte? | Suspected Nature of Disease |
| Datum eerste polikliniekbezoek bij de longarts | Date of First Clinic Visit to Pulmonologist |
| Uitkomst eerste polikliniekbezoek | Outcome of First Clinic Visit |
| Datum waarop pathologische diagnose gesteld is | Date Pathological Diagnosis Established |
| Soort mesothelioom | Type of Mesothelioma |
Table 9: Treatment and Pathology.
| Variables | Description |
|---|---|
| Hoeveel lijnen palliatieve systemische therapieën | Number of Palliative Systemic Therapies Given |
| Welke eerstelijns behandeling | First-line Treatment |
| Welke tweedelijns behandeling | Second-line Treatment |
| PA details NSCLC, PA details adenocarcinoom, etc. | Pathology Details for Various Cancers |
| Is er moleculaire diagnostiek verricht? | Molecular Diagnostics Conducted |
| Wat is de PD-L1 expressie op de tumor | PD-L1 Expression on Tumor |
Table 10: Clinical Staging and Metastasis.
| Variables | Description |
|---|---|
| Klinisch T-stadium | Clinical T-Stage |
| Klinisch N-stadium | Clinical N-Stage |
| Klinisch M-stadium | Clinical M-Stage |
| Aantal metastasen | Number of Metastases |
| Bijnier, Bot, Lever, Hersenen, Anders | Metastasis Locations |
Table 11: Treatment Modalities.
| Variables | Description |
|---|---|
| Chirurgie | Surgery |
| Chemoradiotherapie | Chemoradiotherapy |
| Radiotherapie | Radiotherapy |
| Chemotherapie | Chemotherapy |
| Doelgerichte therapie | Targeted Therapy |
| Immunotherapie | Immunotherapy |
Table 12: Follow-Up and Recurrence.
| Variables | Description |
|---|---|
| Datum follow-up | Date of Follow-Up |
| Is de patient overleden? | Patient Status at Follow-Up |
| Op welke datum werd recidief / progressie vastgesteld | Date of Recurrence or Progression Detected |
Table 13: SARS-CoV-2 Infection Variables.
| Variables | Description |
|---|---|
| Wat was de datum van de eerste verdenking op SARS-CoV-2 besmetting | Date of First Suspicion of SARS-CoV-2 Infection |
| Wat was de datum van de eerste positieve labtest op SARS-CoV-2 | Date of First Positive Lab Test for SARS-CoV-2 |