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Type of database: registry.
Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.
Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.
Type of information: longitudinal. cancer incidence, cancer survival, and mortality of children with cancer by year, age, sex and cancer type. A data dictionary was not found.
Available type of information: cancer incidence, cancer survival, and mortality of children with cancer by year, age, sex and cancer type. Click here to learn more.
Source of Information: Information about GPOH study patients is sent to the DKKR. Click here to learn more.
Data level: national level.
Number of records: Covers more than 95% of the population.
Date range: 1980 onwards.
Cancer areas of interest: C15-C26: Digestive system cancers; C30-C39: Lung/chest cancers; C45-C49: Soft tissue cancer; C50: Breast cancer; C60-C63: Male genitalia cancer; C69-C72: Eye and brain cancer C81-C96: Cancers of the blood and immune system. Click here to learn more.
Data access: partially publicly available. Click here to access. Click here to learn more about the restricted data access. Data can be downloaded in the PDF format. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
Esophagus
Stomach
Small intestine
Large intestine
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Colon
Lung
Trachea
Bronchi
Pleura
Mediastinum
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Prostate
Testicles
Penis
Eye
Brain
Spinal cord
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz
databaseStructure::longitudinal
hasVariable::cancer incidence
hasVariable::cancer survival
hasVariable::number of deaths|mortality
hasVariable::year
hasVariable::age
hasVariable::sex
hasVariable::diagnosis|cancer type
availableVariable::cancer incidence
availableVariable::cancer survival
availableVariable::number of deaths|mortality
availableVariable::year
availableVariable::age
availableVariable::sex
availableVariable::diagnosis|cancer type
dataLevel::national level
dataStart::1980
dataEnd::onwards
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C81-C96: Cancers of the blood and immune system
dataAvailability::partially publicly available
hasDownloadableData::PDF
hasGrantRequirement::Data requires a grant proposal to be accessed
hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
