Database: Andmebaas Cancer Screening Registry (Estonia)
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Sponsor, manager or home institution: The Health Statistics and Health Research Database; The National Institute for Health Development.
Primary purpose: The register collects and analyzes personalized data about the target group of breast, cervical and colon cancer screenings.
Type of information: Data of people belonging to the target group of screening studies; Screened research participation data and the results of the basic and additional studies performed [1]. Data dictionary could not be found for this database.
Available type of information: Andmebaas Cancer Screening Registry[2].
Source of Information: The register collects data from health service providers through electronic mass requests through the health information system. Data is also inherited from the population register, the cause of death register, the cancer register and the health insurance data set of the health insurance fund via the X-tee data exchange layer.
Data level: patient level.
Available data level:
Number of Records: unknown.
Date Range: 2015 onwards.
Cancer Areas of Interest: colon cancer (C18-C20), breast cancer (C50), and cervical cancer (C53).
Data access: partially publicly available [3], to access go to Population > Morbidity > Cancer screening programmes. Instructions to request data for restricted content [4].
Contact information: Information [5].
