Data dictionary: Liver and bile ducts - DHBA
From Beacon
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This is a summary of the variables available in the database. You can download the complete data dictionary. Click here to learn more.
Patient Identification Information
- Health Facility
- Unique Patient Number
- Date of Birth
- Gender
- Date of Death (if applicable)
Comorbidities and Previous Conditions
- Date of Comorbidities
- Myocardial Infarction
- Congestive Heart Failure
- Chronic Pulmonary Disease
- Peripheral Vascular Disease/Aortic Aneurysm
- Cerebrovascular Disease (e.g., Stroke/TIA)
- Dementia
- Para-/Hemiplegia
- Connective Tissue Disease (e.g., Rheumatic Diseases)
- Gastrointestinal Ulcer Disease
- Liver Disease
- Liver Cirrhosis
- Symptomatic Gallstone Disease
- Primary Sclerosing Cholangitis
- Diabetes Mellitus
- Kidney Disease
- HIV/AIDS
- Malignancy (excluding PCC or BCC of the skin)
Surgical and Interventional Procedures
- Date of Comorbidities
- Previous Liver Resection/Ablation for this Condition?
- Length in cm
- Weight on the Day of Surgery (in kg)
- Date of Recurrence Section Creation
- Is there also a recurrence elsewhere besides the liver?
- Date of Recurrence Diagnosis
- Is this recurrence a locoregional recurrence of the previous ablation or resection?
- Date of the Previous Liver Resection/Ablation of the Tumor which the Current Tumor is a Recurrence of (local or intrahepatic elsewhere)
- Recurrence Treatment
- CT Scan?
- MRI Scan of Liver?
- PET Scan?
- CT Volumetry?
- Hepatobiliary Scintigraphy?
- Date of Last Imaging Regarding the Liver Prior to Liver Resection/Ablation
- CEA Value in Blood? (ng/mL)
- CA 19-9 Value in Blood? (U/mL)
- Alpha Fetoprotein (AFP) Value, Unit μg/L
- Total Bilirubin Value? (µmol/L)
- Location of Tumor in Bile Ducts or Gallbladder
- Clinical T Stage of Cholangiocarcinoma on Last Preoperative Imaging
- Clinical N Stage of Cholangiocarcinoma on Last Preoperative Imaging
- Clinical M Stage of Cholangiocarcinoma on Last Preoperative Imaging
- Liver Resection Performed for Gallbladder Carcinoma?
- Indication for Resection
- Presence of Bilobal Disease
- Bismuth-Corlette Type?
- Diameter of Lesion
- Number of Liver Tumors
- Diameter of Largest Lesion in mm (prior to any Neoadjuvant Therapy)
- BCLC Stage Known?
- BCLC Stage
- Presence of Tumor Satellites or Daughter Nodules?
- Origin of Liver Metastases
- Are there Extra-Hepatic Metastases?
- Location of Extrahepatic Liver Metastases
- Are there Other Abdominal Metastases?
- Are there Lung Metastases?
- Are there Metastases at Other Locations?
- Date of First Resection of Primary Tumor
- Pathological N-Classification According to TNM System of Primary Tumor
- Was Preoperative Biliary Drainage Performed?
- Biliary Drainage Technique?
- Was Imaging (CT/MRI) Performed Prior to Biliary Drainage?
- Was the Future Liver Remnant Drained?
- Was Preoperative Portal Embolization Performed?
- When was the Portal Embolization Performed?
- Was a Liver Function Test Done?
- Was a Prehabilitation Process Started?
- Date of Operation/Ablation
- ASA Score as Reported by the Anesthetist
- Procedure
- Reason for Irresectability?
- Procedure
- Is it Synchronous or Metachronous Liver Metastases?
- Type of Treatment for Synchronous Liver Metastases?
- Is the Operation Part of a Two-Stage Procedure?
- Was a Two-Stage Procedure Performed According to the (Mini)-ALPPS Technique?
- Ablation Procedure:
- Radiofrequency Ablation (RFA) - Microwave Ablation (MWA) - Cryoablation - Irreversible Electroporation (IRE)
- Type of Imaging During Ablation
- Type of Anesthesia During Ablation
- Which Specialist Performed the Ablation?
- Number of Ablated Lesions/Metastases.
- Size of Largest Focus Ablated (mm)
- Was there Technical Success?
- Was a Post-Ablation Contrast Scan Made?
- What Procedure was Performed?
- What Type of Liver Resection was Performed?
- Wedge Resection
- Right Hemihepatectomy
- Left Hemihepatectomy
- Extended Right Hemihepatectomy
- Extended Left Hemihepatectomy
- Segmental Resection
* Segment 1
* Segment 2
* Segment 3
* Segment 4a
* Segment 4b
* Segment 5
* Segment 6
* Segment 7
* Segment 8
- Size of Largest Focus for Resection (mm)
- Was it a Major Liver Resection?
- Operation Combined with Other Intra-Abdominal Procedure?
- Additional Resections Due to Tumor Invasion?
- Was Portal Resection and Reconstruction Performed?
- Wedge Excision?
- Segmental Resection?
- How Many Metastases Were Removed?
- How Many Bilio-Digestive Anastomoses Were Performed?
- Number of Abnormalities
- Size of Abnormalities
- Vascular Unfavorable Location
- Extra-Hepatic Abnormalities
- Other
- Unknown
- What was the Blood Loss? (ml)
- Was an Abdominal Drain Placed Perioperatively?
- How Much Volume of the Original Did the Remaining Liver Have After the Operation?
- Were There Complications Within 30 Days After Resection/Ablation?
- Bile Leakage - Severity of Complication - Date of Complication - Was There a Reintervention Due to a Bile Leak? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Post-Bleeding - Post-Bleeding Requiring Blood Transfusion or Intervention - Severity of Complication - Date of Complication - Was There a Reintervention Due to This Post-Bleeding? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Liver Failure - Severity of Complication - Date of Complication - Was There a Reintervention Due to Liver Failure? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Infectious Complication - Intra-Abdominal Infection/Abscess - Severity of Complication - Date of Complication - Was There a Reintervention Due to Intra-Abdominal Infections/Abscess? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Pneumonia - Severity of Complication - Date of Complication - Was There a Reintervention Due to Pneumonia? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Wound Infection/Abscess - Severity of Complication - Date of Complication - Was There a Reintervention Due to a Wound Infection? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Other Infections - Severity of Complication - Date of Complication - Was There a Reintervention Due to Other Infections? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Was There a Thromboembolic Complication? - Severity of Complication - Date of Complication - Was There a Reintervention Due to a Thromboembolic Complication? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Was There a Cardiac Complication? - Severity of Complication - Date of Complication - Was There a Reintervention Due to a Cardiac Complication? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Pleural Effusion - Severity of Complication - Date of Complication - Was There a Reintervention Due to Pleural Effusion? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Ascites - Severity of Complication - Date of Complication - Was There a Reintervention Due to Ascites? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Pneumothorax Requiring Reintervention - Severity of Complication - Date of Complication - Was There a Reintervention Due to a Pneumothorax? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Skin Burns - Severity of Complication - Date of Complication - Was There a Reintervention Due to Skin Burns? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Other - Severity of Complication - Date of Complication - Was There a Reintervention Due to Other Complications? - Nature of Reintervention - Did this Reintervention Take Place Under General Anesthesia? - Was There an Intervention Due to the Complication? - Did This Reintervention Take Place Under General Anesthesia? - Nature of Reintervention (Choose Most Invasive) - Reintervention Under General Anesthesia? - Number of Days in Intensive Care / PACU - What was the Reason for (Extended) IC Admission or Readmission to IC? - Was There Organ Failure? - Date of Discharge - Did the Patient Die During the Hospital Stay or Within 30 Days After the Operation? - Was the Patient Readmitted to the Hospital Within 30 Days After Discharge? - Was the Reason for Readmission a Complication? - Was the Patient Admitted to the Medium/Intensive Care Unit During Readmission? - How Many Days was the Patient Admitted to the MC/IC During Readmission? - Date of Readmission - Date of Discharge After Readmission - What is the Diagnosis?
- pT Stage of Perihilar Cholangiocarcinoma According to Pathology Report
- pN Stage of Perihilar Cholangiocarcinoma According to Pathology Report
- pM Stage of Perihilar Cholangiocarcinoma According to Pathology Report
- pT Stage of Gallbladder Carcinoma According to Pathology Report
- pN Stage of Gallbladder Carcinoma According to Pathology Report
- pM Stage of Gallbladder Carcinoma According to Pathology Report
- pG Stage According to Pathology Report
- Pathological T Stage of HCC According to Pathology Report
- Pathological N Stage of HCC According to Pathology Report
- Pathological M Stage of HCC According to Pathology Report
- pT Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report
- pTN Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report
- pM Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report
- Number of Tumors in the Resection Specimen
- Was the Tumor Radically Removed?
- Irradicality at Liver Resection Level?
- Irradicality at Distal Bile Duct Level?
- Irradicality at Proximal Bile Duct Level?
- What is the Image of the Unaffected Liver?
- PA Number (TJJ-CCCCCC)
- PA Laboratory
- Was (Neo-)Adjuvant Chemotherapy Given for the Liver Abnormality or the Abnormality of the Bile Ducts or Gallbladder?
- Induction for Downstaging
- Neoadjuvant for Resectable Tumor
- Adjuvant for Resectable Tumor
- Is Patient Participating in a Trial?
- The Doctor Can Check Here That the Patient's Data is Complete and Correct.
Date of Last Information on Survival Status (If the Patient is Deceased, This is the Death Date)
- Health Facility
- Hospital Patient Number
- Is the Patient Deceased?
- Is There a Recurrence After the Last Procedure?
- Date of Recurrence Diagnosis
- Was This Recurrence a Locoregional Recurrence of an Earlier Ablation or Resection?
- Date of the Previous Liver Resection/Ablation of the Tumor which the Current Tumor is a Recurrence of (local or intrahepatic elsewhere)
- Date of Last Information on Recurrence Status
- Is This Recurrence Being Treated?
- Nature of Reintervention
COVID-19 Related Variables
- Was There a (Clinical) Suspicion or Test for a SARS-CoV-2 Infection from the Period Before Admission to 30 Days After Admission?
- Admission Date or, If Not Available, Date of Treatment
- Was the Patient Tested for a SARS-CoV-2 Infection by CT Thorax, RT-PCR, or Another Specific Lab Test?
- Date of First Suspicion of SARS-CoV-2 Infection [ICD-10: U07.2 Date]
- If Unknown: Was This Before Treatment or During/After Treatment?
- Date of First Specific Test for SARS-CoV-2 Infection [ICD-10: U07.1 or U07.2 Date]
- If Unknown: Was This Before Treatment or During/After Treatment?
- Date of First Positive Lab Test for SARS-CoV-2 [ICD-10: U07.1 Date]
- If Unknown: Was This Before Treatment or During/After Treatment?
- IC Admission Date and Time
- IC Discharge Date and Time
- Destination After IC Admission
- What Was the Ultimate Status Regarding SARS-CoV-2?
- Are You Participating in the COVIDSURG II Snapshot Study for This Registration?
- Was There a Clinical Suspicion or Test for SARS-CoV-2 Infection or COVID-19 Around the Time of the Surgery?
- Symptoms Compatible with COVID-19?
- Coughing - Fever - Dyspnea - Loss of Smell and/or Taste - Other
- Number of Days of Symptoms Prior to Surgery
- Did or Does the Patient Smoke?
- Number of Packyears
- What is the Patient's Height? (in cm)
- What was the Patient's Weight at Admission? (in kg)
- Was the Patient Tested for a SARS-CoV-2 Infection?
- What Type(s) of Test(s) Did the Patient Undergo Preoperatively?
- RT-PCR - X-ray or CT Thorax - Serology - Other
- Number of Times Preoperative RT-PCR Test was Performed
- Date of First Preoperative RT-PCR Test
- Date of First Positive Preoperative RT-PCR Test
- X-ray Thorax - Consolidations
- CT Thorax - CORADS Score
- Number of Preoperative CT Thoraxes with COVID-19 Question
- Date of First Preoperative CT Thorax with COVID-19 Questioning
- Date of First Preoperative CT Thorax with a CORADS Score of 4-5
- Definitive Preoperative COVID-19 Status
- Were There Pre-Operative COVID-Related Complications?
- COVID-Related Complications?
- ARDS - Acute Kidney Failure - Arrhythmias - Thrombo-Embolic Events - Other
- Thrombo-Embolic Events?
- Pulmonary Embolism - DVT - Bowel Ischemia - Other
- Therapeutic Anticoagulation Prior to Embolic Event?
- Therapeutic Anticoagulation Following COVID-Related Embolic Event?
- Impact on Neoadjuvant Treatment?
- What Impact on Neoadjuvant Treatment?
- Abstained from Pretreatment - Type of Pretreatment Changed (e.g., Chemoradiation Instead of Chemo, Chemo Instead of Immuno) - Treatment Schedule/Dosage Changed (e.g., More or Fewer Courses, Higher or Lower Dose) - Same Type of Treatment, Different Drug (e.g., 5FU Instead of Docetaxel) - Other
- Impact on Planning/Surgery Postponed?
- Reason for Impact on Planning/Surgery Postponed?
- Due to COVID Suspicion/Test - Due to Limited Healthcare Capacity COVID Crisis - Other Reason
- Impact on Surgical Approach (Scopic/Robot/Open)?
- Impact on Surgical Approach (Scopic/Robot/Open)?
- Due to COVID Suspicion/Test - Due to Limited Healthcare Capacity COVID Crisis - Protection of Surgical Team - Other
- Were There Postoperative Complaints Compatible with COVID-19?
- What Complaints Compatible with COVID-19?
- Coughing - Fever - Dyspnea - Loss of Smell and/or Taste - Other
- How Many Days After Surgery Did COVID-19 Symptoms Begin?
- Was the Patient Tested for a SARS-CoV-2 Infection Postoperatively?
- What Type(s) of Test(s) Did the Patient Undergo Postoperatively?
- RT-PCR - X-ray or CT Thorax - Serology - Other
- Number of Times Postoperative RT-PCR Test was Performed
- Date of First Postoperative RT-PCR
- Date of First Positive Postoperative RT-PCR?
- X-ray Thorax - Consolidations
- CT Thorax - CORADS Score
- Number of CT Thorax with COVID-19 Questioning
- Date of First Postoperative CT Thorax with COVID-19 Questioning
- Date of First Postoperative CT Thorax with a CORADS Score of 4-5
- Definitive Postoperative COVID-19 Status
- Were There Postoperative COVID-Related Complications?
- COVID-Related Complications?
- ARDS - Acute Kidney Failure - Arrhythmias - Thrombo-Embolic Events
- Thrombo-Embolic Events?
- Pulmonary Embolism - DVT - Bowel Ischemia - Other
- Therapeutic Anticoagulation Prior to Embolic Event?
- Therapeutic Anticoagulation Following COVID-Related Embolic Event?
- Was There an IC Admission Around the Time of Surgery?
- Was There a COVID-Related IC Admission?
- Was COVID Diagnosed During the IC Admission?
- What Respiratory Support During the IC Admission?
- Prone Ventilation - ECMO
- IC Admission Date
- IC Discharge Date
- Duration of IC Admission (Days)
- Destination After Last IC Admission