Database: German Childhood Cancer Registry (DKKR) (Germany)

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Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.

Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.

Type of information: Incidence, survival and mortality of children with cancer by age, sex and cancer type.

Source of Information: Information about GPOH study patients is sent to the DKKR. Click here to learn more.

Data level: national level.

Number of records: Covers more than 95% of the population.

Date range: 1980 onwards.

Cancer areas of interest: C15-C26: Digestive system cancers; C30-C39: Lung/chest cancers; C45-C49: Soft tissue cancer; hasCancerType::C50: Breast cancer]]; C60-C63: Male genitalia cancer; C69-C72: Eye and brain cancer C81-C96: Cancers of the blood and immune system. Click here to learn more.

Open data access: partially publicly available [1]. Instructions to request data for restricted content [2].

Contact information: Information [3].