Germany
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Cancer Centers
Healthcare System
Administrative or Claims Data
Registries
Database: ZfKD Cancer Registry
Database: Cause of Death Registry
Database: German Childhood Cancer Registry (DKKR)
Databases for Clinical Trials, Surveys and Biobanks
Clinical Practices Guidelines
Latest Policymaking Initiatives
Report: Cancer in Germany
Report: National Association of Statutory Health Insurance Annual Reports
Compilation: Documents regarding Cancer Registry legislation
Reports: Occurrence of Cancer in German
Report: EU Country Cancer Profile 2023
Initiative: National Decade against Cancer
Sponsor, manager or home institution: Federal Ministry of Education and Research (BMBF); Federal Ministry of Health and many other partners.
Primary purpose: To mobilize key players in Germany to collaborate on cancer research, involving patients closely, accelerating innovations, and ultimately reducing the incidence of cancer, improving early diagnosis, and developing better treatments.
Data level: National level.
Access to information: Access Information [1]. Survey: National Decade against Cancer.
Compilation: Patient Guidelines
Sponsor, manager or home institution: European Society for Medical Oncology.
Primary purpose: Inform cancer patients about their condition using the results of the latest medical research.
Available guides: Cancer Therapy During the COVID-19 Pandemic; Immunotherapy related side effects and their management; Survivorship; Cancer pain; Multiple Myelom.
Type of information: Information about cancer, diagnosis, treatment, supportive care, advice, and literature on the subject. There are guidelines about multiple cancer types as well as other information such as supportive care guidelines.
Access to information: List of guides [2].
Compilation: Self-help Groups and Initiatives
Sponsor, manager or home institution: Charité Comprehensive Cancer Center.
Primary purpose: To support cancer self-help groups and initiatives through cooperation, information, and resources.
Available guides and informations: National contact points for self-help; Regional self-help contact points; Cancer counseling in general; Psychosocial Support; Other languages informations; Prevention; Relatives of cancer patients; Parents of children with cancer; Women and cancer; Young people and cancer; Children and cancer; Men and cancer; After Cancer; Employment And Cancer; Self-Help Creative; Bereavement Groups; Peritoneum; Pancreas; Bladder; Blood; Breast; Colon; Ovary, Fallopian Tube And Uterus And Other Gynecological Tumors; Hereditary Tumor Disease | Familial Tumor Diseases | Genetic Tumor Diseases; Fatigue; Brain; Skin; Testicles; Head - Neck - Larynx - Face - Mouth; Leukemia; Lung; Lymphomas / Non-Hodgkin Lymphomas / Myelomas; Stomach; Neuroendocrine Tumors (Net, Gep); Kidney; Prostate; Sarcomas; Thyroid; Urological Tumors; Vhl - Hippel-Lindau Disease; Vulva.
Type of information: The support groups for people with cancer and their relatives; how to find the support groups; The different types of support groups available; The self-help group and association by type of cancer; Cancer counselings; A list of resources, such as websites, phone numbers, and addresses of support groups in the area.
Access to information: List of guides and informations [3].
Patient Association: Deutsche Krebshilfe (DKH)
Sponsor, manager or home institution: German Cancer Aid.
Primary purpose: To fight cancer in all its manifestations through research, support, and information.
Access to information: Information [4].
Patient Association: Berlin Cancer Society
Sponsor, manager or home institution: Berliner Krebsgesellschaft.
Primary purpose: To provide support and advocacy to people with cancer and their families.
Access to information: Information [5].
Resource: Krebsinformationsdienst
Primary purpose: To provide individuals affected by cancer with up-to-date knowledge, support, and individualized information while offering independent, quality-assured information for professionals involved in cancer care.
Access to information: Information [6].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [7] and Palliative Care [8].
