Germany
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Cancer Centers
Healthcare System
Administrative or Claims Data
Registries
Database: ZfKD Cancer Registry
Database: Cause of Death Registry
Database: German Childhood Cancer Registry (DKKR)
Databases for Clinical Trials, Surveys and Biobanks
Clinical Practices Guidelines
Latest Policymaking Initiatives
Report: Cancer in Germany
Report: National Association of Statutory Health Insurance Annual Reports
Compilation: Documents regarding Cancer Registry legislation
Reports: Occurrence of Cancer in German
Report: EU Country Cancer Profile 2023
Initiative: National Decade against Cancer
Sponsor, manager or home institution: Federal Ministry of Education and Research (BMBF); Federal Ministry of Health and many other partners.
Primary purpose: To mobilize key players in Germany to collaborate on cancer research, involving patients closely, accelerating innovations, and ultimately reducing the incidence of cancer, improving early diagnosis, and developing better treatments.
Data level: National level.
Access to information: Access Information [1]. Survey: National Decade against Cancer.
Compilation: ESMO Patient Guides
Compilation: Self-help Groups and Initiatives
Patient Association: Deutsche Krebshilfe (DKH)
Sponsor, manager or home institution: German Cancer Aid.
Primary purpose: To fight cancer in all its manifestations through research, support, and information.
Access to information: Information [2].
Patient Association: Berlin Cancer Society
Sponsor, manager or home institution: Berliner Krebsgesellschaft.
Primary purpose: To provide support and advocacy to people with cancer and their families.
Access to information: Information [3].
Resource: Krebsinformationsdienst
Primary purpose: To provide individuals affected by cancer with up-to-date knowledge, support, and individualized information while offering independent, quality-assured information for professionals involved in cancer care.
Access to information: Information [4].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [5] and Palliative Care [6].
