Data Dictionary: ZfkD Cancer Registry (Germany)
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| Variable (English) | Description | Value range |
|---|---|---|
| Date of birth | Patient's date of birth represented in international format YYYY-MM-DD. | Date YYYY-MM-DD |
| Date of death or last known alive date | Date of death (imputed) or last known alive date. For DCO cases, date of death = incidence date. | Date YYYY-MM-DD |
| Other cause of death, ICD-10 code | Other cause(s) of death as reported to the registry, ICD-10 code | ICD-10 code |
| Other cause of death, ICD-10 version | ICD-10 version used to encode other cause(s) of death | ICD-10 version |
| Diagnosis date | Date of incidence represented in international format YYYY-MM-DD. For DCO cases, incidence date = date of death. | Date YYYY-MM-DD |
| Year of incidence | Year of incidence. For DCO cases, year of incidence is equal to year of death. | Date YYYY |
| Age at diagnosis | Number of years between date of birth and date of diagnosis | Age (years) |
| Place of residence at diagnosis | "Place of residence at diagnosis, represented by 5-digit area code (""Kreiskennziffer"")" | 5-digit area code |
| Place of residence at diagnosis | "Place of residence at diagnosis, represented by 2-digit area code (""Bundesland"")" | 2-digit area code |
| Tumor diagnosis, ICD-10 code | ICD-10 diagnostic code of tumor | ICD-10, 4-digit code |
| Tumor diagnosis, ICD-10 version | ICD-10 version used to encode tumor diagnosis | ICD-10 version |
| Topography of tumor, ICD-O-3 code | Tumor site represented by ICD-O-3 topography code | ICD-O-3 (topography section) 4-digit code |
| Morphology of tumor, ICD-O-3 code | Morphology and behavior of tumor represented by 5-digit ICD-O-3 code. The fifth digit indicates tumor behavior (/0 benign; /1 uncertain; /2 carcinoma in situ; /3 malignant). | ICD-O-3 (morphology section), 5-digit code |
| Number of lymph nodes examined | Number of lymph nodes that were examined for the presence of cancer cells | (n) = number of lymph nodes |
| Number of lymph nodes affected | Number of lymph nodes that contain cancer cells | (n) = number of lymph nodes |
| cTNM: T | Describes the size of the primary tumor. Staging according to tumor-specific TNM. | T stage, tumor-specific |
| cTNM: N | Describes the degree of spread to regional lymph nodes. Staging according to tumor-specific TNM. | N stage, tumor-specific |
| cTNM: UICC Stage | UICC Stage according to TNM. Describes the anatomical extent of disease. | UICC stage, tumor-specific |
| pTNM: T | Describes the size of the primary tumor. Staging according to tumor-specific TNM. | T stage, tumor-specific |
| pTNM: N | Describes the degree of spread to regional lymph nodes. Staging according to tumor-specific TNM. | N stage, tumor-specific |
| pTNM: UICC stage | UICC Stage according to TNM. Describes the anatomical extent of disease. | UICC stage, tumor-specific |
| Other classification system: name | Name and/or type of other classification(s) used | e.g. Ann Arbor staging, WHO Classification of CNS Tumors, AJCC |
| Other classification system: stage | Stage assigned based on other classification system | Stage |
| Survival time | Time interval between incidence date and death | (n) = number of days |
| Tumor size | Maximum diameter of invasive carcinoma (in mm) | (n) = tumor size in mm |
| DCIS size | Maximum diameter of ductal carcinoma in situ (in mm) | (n) = DCIS size in mm |
| PSA level | PSA level (ng/mL) | (n) = level in ng/mL |
| PSA level date | Date of PSA blood test | Date YYYY-MM-DD |
| Gleason: primary grade | Primary Gleason grade | 1, 2, 3, 4 or 5 |
| Gleason: secondary grade | Secondary Gleason grade | 1, 2, 3, 4 or 5 |
| Gleason score | Gleason score | 2, 3, 4, 5, 6, 7, 7a, 7b, 8, 9 or 10 |
| Tumor thickness | Thickness of tumor (mm) | (n) = thickness in mm |
| LDH level | LDH level (units per liter) | (n) = level in U/L |
| Surgery date | Surgery date represented in ISO 8601 format YYYY-MM-DD. Year and month of surgery are collected from registries, day of surgery is assigned an arbitrary value. | Date YYYY-MM-DD |
| Surgery type | OPS code of surgery | OPS code |
| OPS version | OPS version used to encode surgery type | OPS version number |
| Time to surgery | Number of days between diagnosis and surgery | (n) = number of days |
| Radiotherapy start date | Radiotherapy start date | Date YYYY-MM-DD |
| Percutaneous radiotherapy - Stereotactic | Indicates if percutaneous radiotherapy (external beam radiotherapy) was applied using stereotactic techniques. | ST = stereotactic |
| Percutaneous radiotherapy - Respiratory-gated | Indicates if percutaneous radiotherapy (external beam radiotherapy) was respiratory-gated. | 4D = respiratory-gated |
| Radiotherapy duration | Number of days between diagnosis and surgery | (n) = number of days |
| Time to radiotherapy | Time interval between incidence date and radiotherapy start date (days) | (n) = number of days |
| Systemic therapy drug | Medication(s) used for systemic therapy. Multiple medications require separate entries. | Name or: ATC code + ATC version |
| Systemic therapy protocol type | Systemic therapy protocol name or code. | "Name or: protocol code |
| Systemic therapy protocol | Systemic therapy protocol code. | Suggested guidance: https://plattform65c.atlassian.net/wiki/spaces/UMK/pages/15532519/Protokolle |
| Systemic therapy protocol | Systemic therapy protocol name | (name) = protocol name |
| Systemic therapy protocol | Systemic therapy protocol version | (version) = protocol version |
| Systemic therapy start date | Systemic therapy start date | Date YYYY-MM-DD |
| Systemic therapy duration | Systemic therapy duration (days) | (n) = number of days |
| Time to systemic therapy | Time interval between incidence date and systemic therapy start date (days) | (n) = number of days |
| Follow-up date | Date of most recent follow-up evaluation of tumor status | Date YYYY-MM-DD |
| TNM: T | Describes the size of the primary tumor. Staging according to tumor-specific TNM. | T stage, tumor-specific |
| TNM: N | Describes the degree of spread to regional lymph nodes. Staging according to tumor-specific TNM. | N stage, tumor-specific |
| TNM: UICC stage | UICC Stage at follow-up according to TNM. Describes the anatomical extent of disease. | UICC stage, tumor-specific |
| Other classification system: name | Name and/or type of other classification(s) used | e.g. Ann Arbor staging, WHO Classification of CNS Tumors, AJCC |
| Other classification system: stage | Stage assigned based on other classification system | Stage |
