Database: ZfKD Cancer Registry (Germany)

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Type of database: registry.

Primary purpose: Collect and compile epidemiological cancer data from state cancer registries at the federal level.

Sponsor, manager or home institution: Zentrum für Krebsregisterdaten.

Type of information: longitudinal. To see the full data dictionary click here to learn more.

Available type of information: cancer incidence, cancer prevalence, causes of death, cancer survival, number of deaths, case numbers, crude rate, and age-standardized rate, filtered by diagnosis, age, sex, and year.

Source of Information: Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries. Click here to learn more.

Data level: patient level.

Available data level: national level.

Number of records: unknown.

Date range: 1999 onwards.

Cancer areas of interest: C00-C97: All cancer types. See the full list of cancer types: ZfKD Cancer Registry. Click here to learn more.

Data access: partially publicly available. Click here to access. Data can be downloaded in the formats XLS and CSV. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.