Data dictionary: Liver and bile ducts - DHBA
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This is a summary of the variables available in the database. You can download the complete data dictionary. Click here to learn more.
Table 1: Patient Identification Information
| Variables |
|---|
| Health Facility |
| Unique Patient Number |
| Date of Birth |
| Gender |
| Date of Death (if applicable) |
Table 2: Comorbidities and Previous Conditions
| Variables |
|---|
| Date of Comorbidities |
| Myocardial Infarction |
| Congestive Heart Failure |
| Chronic Pulmonary Disease |
| Peripheral Vascular Disease/Aortic Aneurysm |
| Cerebrovascular Disease (e.g., Stroke/TIA) |
| Dementia |
| Para-/Hemiplegia |
| Connective Tissue Disease (e.g., Rheumatic Diseases) |
| Gastrointestinal Ulcer Disease |
| Liver Disease |
| Liver Cirrhosis |
| Symptomatic Gallstone Disease |
| Primary Sclerosing Cholangitis |
| Diabetes Mellitus |
| Kidney Disease |
| HIV/AIDS |
| Malignancy (excluding PCC or BCC of the skin) |
Table 3: Surgical and Interventional Procedures
| Variables |
|---|
| Date of Comorbidities |
| Previous Liver Resection/Ablation for this Condition? |
| Length in cm |
| Weight on the Day of Surgery (in kg) |
| Date of Recurrence Section Creation |
| Is there also a recurrence elsewhere besides the liver? |
| Date of Recurrence Diagnosis |
| Is this recurrence a locoregional recurrence of the previous ablation or resection? |
| Date of the Previous Liver Resection/Ablation of the Tumour which the Current Tumour is a Recurrence of (local or intrahepatic elsewhere) |
| Recurrence Treatment |
| CT Scan? |
| MRI Scan of Liver? |
| PET Scan? |
| CT Volumetry? |
| Hepatobiliary Scintigraphy? |
| Date of Last Imaging Regarding the Liver Prior to Liver Resection/Ablation |
| CEA Value in Blood? (ng/mL) |
| CA 19-9 Value in Blood? (U/mL) |
| Alpha Fetoprotein (AFP) Value, Unit μg/L |
| Total Bilirubin Value? (µmol/L) |
| Location of Tumour in Bile Ducts or Gallbladder |
| Clinical T Stage of Cholangiocarcinoma on Last Preoperative Imaging |
| Clinical N Stage of Cholangiocarcinoma on Last Preoperative Imaging |
| Clinical M Stage of Cholangiocarcinoma on Last Preoperative Imaging |
| Liver Resection Performed for Gallbladder Carcinoma? |
| Indication for Resection |
| Presence of Bilobal Disease |
| Bismuth-Corlette Type? |
| Diameter of Lesion |
| Number of Liver Tumours |
| Diameter of Largest Lesion in mm (prior to any Neoadjuvant Therapy) |
| BCLC Stage Known? |
| BCLC Stage |
| Presence of Tumour Satellites or Daughter Nodules? |
| Origin of Liver Metastases |
| Are there Extra-Hepatic Metastases? |
| Location of Extrahepatic Liver Metastases |
| Are there Other Abdominal Metastases? |
| Are there Lung Metastases? |
| Are there Metastases at Other Locations? |
| Date of First Resection of Primary Tumour |
| Pathological N-Classification According to TNM System of Primary Tumour |
| Was Preoperative Biliary Drainage Performed? |
| Biliary Drainage Technique? |
| Was Imaging (CT/MRI) Performed Prior to Biliary Drainage? |
| Was the Future Liver Remnant Drained? |
| Was Preoperative Portal Embolization Performed? |
| When was the Portal Embolization Performed? |
| Was a Liver Function Test Done? |
| Was a Prehabilitation Process Started? |
| Date of Operation/Ablation |
| ASA Score as Reported by the Anesthetist |
| Procedure |
| Reason for Irresectability? |
| Procedure |
| Is it Synchronous or Metachronous Liver Metastases? |
| Type of Treatment for Synchronous Liver Metastases? |
| Is the Operation Part of a Two-Stage Procedure? |
| Was a Two-Stage Procedure Performed According to the (Mini)-ALPPS Technique? |
| Ablation Procedure: |
| Type of Imaging During Ablation |
| Type of Anesthesia During Ablation |
| Which Specialist Performed the Ablation? |
| Number of Ablated Lesions/Metastases. |
| Size of Largest Focus Ablated (mm) |
| Was there Technical Success? |
| Was a Post-Ablation Contrast Scan Made? |
| What Procedure was Performed? |
| What Type of Liver Resection was Performed? |
| Size of Largest Focus for Resection (mm) |
| Was it a Major Liver Resection? |
| Operation Combined with Other Intra-Abdominal Procedure? |
| Additional Resections Due to Tumour Invasion? |
| Was Portal Resection and Reconstruction Performed? |
| Wedge Excision? |
| Segmental Resection? |
| How Many Metastases Were Removed? |
| How Many Bilio-Digestive Anastomoses Were Performed? |
| Number of Abnormalities |
| Size of Abnormalities |
| Vascular Unfavorable Location |
| Extra-Hepatic Abnormalities |
| Other |
| Unknown |
| What was the Blood Loss? (ml) |
| Was an Abdominal Drain Placed Perioperatively? |
| How Much Volume of the Original Did the Remaining Liver Have After the Operation? |
| Were There Complications Within 30 Days After Resection/Ablation? |
| pT Stage of Perihilar Cholangiocarcinoma According to Pathology Report |
| pN Stage of Perihilar Cholangiocarcinoma According to Pathology Report |
| pM Stage of Perihilar Cholangiocarcinoma According to Pathology Report |
| pT Stage of Gallbladder Carcinoma According to Pathology Report |
| pN Stage of Gallbladder Carcinoma According to Pathology Report |
| pM Stage of Gallbladder Carcinoma According to Pathology Report |
| pG Stage According to Pathology Report |
| Pathological T Stage of HCC According to Pathology Report |
| Pathological N Stage of HCC According to Pathology Report |
| Pathological M Stage of HCC According to Pathology Report |
| pT Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report |
| pTN Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report |
| pM Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report |
| Number of Tumours in the Resection Specimen |
| Was the Tumour Radically Removed? |
| Irradicality at Liver Resection Level? |
| Irradicality at Distal Bile Duct Level? |
| Irradicality at Proximal Bile Duct Level? |
| What is the Image of the Unaffected Liver? |
| PA Number (TJJ-CCCCCC) |
| PA Laboratory |
| Was (Neo-)Adjuvant Chemotherapy Given for the Liver Abnormality or the Abnormality of the Bile Ducts or Gallbladder? |
| Induction for Downstaging |
| Neoadjuvant for Resectable Tumour |
| Adjuvant for Resectable Tumour |
| Is Patient Participating in a Trial? |
| The Doctor Can Check Here That the Patient's Data is Complete and Correct. |
Table 4: Date of Last Information on Survival Status (If the Patient is Deceased, This is the Death Date)
| Variables |
|---|
| Health Facility |
| Hospital Patient Number |
| Is the Patient Deceased? |
| Is There a Recurrence After the Last Procedure? |
| Date of Recurrence Diagnosis |
| Was This Recurrence a Locoregional Recurrence of an Earlier Ablation or Resection? |
| Date of the Previous Liver Resection/Ablation of the Tumour which the Current Tumour is a Recurrence of (local or intrahepatic elsewhere) |
| Date of Last Information on Recurrence Status |
| Is This Recurrence Being Treated? |
| Nature of Reintervention |
Table 5: COVID-19 Related Variables
| Variables |
|---|
| Was There a (Clinical) Suspicion or Test for a SARS-CoV-2 Infection from the Period Before Admission to 30 Days After Admission? |
| Admission Date or, If Not Available, Date of Treatment |
| Was the Patient Tested for a SARS-CoV-2 Infection by CT Thorax, RT-PCR, or Another Specific Lab Test? |
| Date of First Suspicion of SARS-CoV-2 Infection [ICD-10: U07.2 Date] |
| If Unknown: Was This Before Treatment or During/After Treatment? |
| Date of First Specific Test for SARS-CoV-2 Infection [ICD-10: U07.1 or U07.2 Date] |
| If Unknown: Was This Before Treatment or During/After Treatment? |
| Date of First Positive Lab Test for SARS-CoV-2 [ICD-10: U07.1 Date] |
| If Unknown: Was This Before Treatment or During/After Treatment? |
| IC Admission Date and Time |
| IC Discharge Date and Time |
| Destination After IC Admission |
| What Was the Ultimate Status Regarding SARS-CoV-2? |
| Are You Participating in the COVIDSURG II Snapshot Study for This Registration? |
| Was There a Clinical Suspicion or Test for SARS-CoV-2 Infection or COVID-19 Around the Time of the Surgery? |
| Symptoms Compatible with COVID-19? |
| Number of Days of Symptoms Prior to Surgery |
| Did or Does the Patient Smoke? |
| Number of Packyears |
| What is the Patient's Height? (in cm) |
| What was the Patient's Weight at Admission? (in kg) |
| Was the Patient Tested for a SARS-CoV-2 Infection? |
| What Type(s) of Test(s) Did the Patient Undergo Preoperatively? |
| Number of Times Preoperative RT-PCR Test was Performed |
| Date of First Preoperative RT-PCR Test |
| Date of First Positive Preoperative RT-PCR Test |
| X-ray Thorax - Consolidations |
| CT Thorax - CORADS Score |
| Number of Preoperative CT Thoraxes with COVID-19 Question |
| Date of First Preoperative CT Thorax with COVID-19 Questioning |
| Date of First Preoperative CT Thorax with a CORADS Score of 4-5 |
| Definitive Preoperative COVID-19 Status |
| Were There Pre-Operative COVID-Related Complications? |
| COVID-Related Complications? |
| Thrombo-Embolic Events? |
| Therapeutic Anticoagulation Prior to Embolic Event? |
| Therapeutic Anticoagulation Following COVID-Related Embolic Event? |
| Impact on Neoadjuvant Treatment? |
| What Impact on Neoadjuvant Treatment? |
| Impact on Planning/Surgery Postponed? |
| Reason for Impact on Planning/Surgery Postponed? |
| Impact on Surgical Approach (Scopic/Robot/Open)? |
| Impact on Surgical Approach (Scopic/Robot/Open)? |
| Were There Postoperative Complaints Compatible with COVID-19? |
| What Complaints Compatible with COVID-19? |
| How Many Days After Surgery Did COVID-19 Symptoms Begin? |
| Was the Patient Tested for a SARS-CoV-2 Infection Postoperatively? |
| What Type(s) of Test(s) Did the Patient Undergo Postoperatively? |
| Number of Times Postoperative RT-PCR Test was Performed |
| Date of First Postoperative RT-PCR |
| Date of First Positive Postoperative RT-PCR? |
| X-ray Thorax - Consolidations |
| CT Thorax - CORADS Score |
| Number of CT Thorax with COVID-19 Questioning |
| Date of First Postoperative CT Thorax with COVID-19 Questioning |
| Date of First Postoperative CT Thorax with a CORADS Score of 4-5 |
| Definitive Postoperative COVID-19 Status |
| Were There Postoperative COVID-Related Complications? |
| COVID-Related Complications? |
| Thrombo-Embolic Events? |
| Therapeutic Anticoagulation Prior to Embolic Event? |
| Therapeutic Anticoagulation Following COVID-Related Embolic Event? |
| Was There an IC Admission Around the Time of Surgery? |
| Was There a COVID-Related IC Admission? |
| Was COVID Diagnosed During the IC Admission? |
| What Respiratory Support During the IC Admission? |
| IC Admission Date |
| IC Discharge Date |
| Duration of IC Admission (Days) |
| Destination After Last IC Admission |
