Database: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST) (Greece)
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Type of database: registry, biobank.
Primary purpose: Provide information about cancer incidence in children (0-14 years old) across Greece.
Sponsor, manager or home institution: NARECHEM-ST.
Type of information: longitudinal. Data dictionary has not been found. It includes demographic data, personal and family history of the primary child, sex, age, year; confirmed diagnosis, tumour morphology and localization, stage, metastases, and cancer survival. Moreover, biological samples are accessible for the majority of cases and controls. If applicable, bone marrow aspiration slides and biopsy reports are provided, while biopsy specimens are stored in their respective Pathology Departments. There is also follow-up data on all patients as well as biological materials collected and stored. Click here to learn more.
Available type of information: age; sex; diagnosis; tumour histology; tumour staging; cancer incidence; year.
Source of Information: Reports mainly from seven pediatric hematology-oncology departments across Greece, and personal interviews with children or their guardians.
Data level: patient level.
Available data level: national level.
Number of records: About 4000 patients.
Date range: 1996 to 2019.
Cancer areas of interest: C15-C26: Digestive system cancers; C64-C68: Urinary system cancers; C69-C72: Eye and brain cancer; C73-C75: Thyroid and other gland cancers; C81-C96: Cancers of the blood and immune system. See the full list of cancer types:
Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST).
Data access: partially publicly available. Click here to access. Data can be downloaded in the JPG format. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
