EHDEN Participation (University Hospital for Tumours of Zagreb)

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The Clinical Hospital Center “Sestre Milosrdnice” is part of the EHDEN Network of Data Partners.

The European Health Data and Evidence Network (EHDEN) aims to standardize European health data using OMOP-CDM to facilitate research. The project creates a federated network of data sources for easy access by researchers and policymakers. Its goal is to improve healthcare outcomes through better data quality and interoperability.

Primary purpose: To serve as an all-encompassing platform that manages various hospital processes from admission to discharge, with ongoing updates for medical, administrative, and legislative changes.

Type of information: The database contains patient-centric data covering a wide range of hospital activities, from appointments and diagnostics to nursing and transfers, structured up to CDA level 2 details.

Data level: regional level.

Number of records: 600,000 patients.

Data range: 2010.

Cancer areas of interest: C00-D48: All neoplasms.

Data access: not publicly available. Instructions for data request click here to access.

Contact information: Click here to access.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia dataLevel::regional level dataStart::2010| dataEnd::2010 hasCancerType::C00-D48: All neoplasms dataAvailability::not publicly available hasDataAccessInstructions::[https://www.kbcsm.hr/o-bolnici/povjerenstva-kbc-sestre-milosrdnice/eticko-povjerenstvo/ click here to access