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Type of database: registry.
Primary purpose: Collect and compile epidemiological cancer data from state cancer registries at the federal level.
Sponsor, manager or home institution: Zentrum für Krebsregisterdaten.
Type of information: longitudinal. sex; age; diagnosis; year; place of residence; medical procedures; tumour histology; tumour staging; primary tumour localization; check-up examinations. To see the full data dictionary click here to learn more.
Data Dictionary: ZfkD Cancer Registry
Available type of information: cancer incidence, cancer prevalence, causes of death, cancer survival, number of deaths, case numbers, crude rate, and age-standardized rate, filtered by diagnosis, age, sex, and year.
Source of Information: Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries. Click here to learn more.
Data level: patient level.
Available data level: national level.
Number of records: unknown.
Date range: 1999 onwards.
Cancer areas of interest: C00-C97: All cancer types. See the full list of cancer types:
ZfKD Cancer Registry.
Click here to learn more.
Data access: partially publicly available. Click here to access. Data can be downloaded in the formats XLS and CSV. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Zentrum für Krebsregisterdaten
databaseStructure::longitudinal
hasVariable::sex
hasVariable::age
hasVariable::diagnosis
hasVariable::year
hasVariable::place of residence
hasVariable::medical procedures
hasVariable::tumour histology
hasVariable::tumour staging
hasVariable::primary tumour localization
hasVariable::check-up examinations
hasDataDictionary::Data Dictionary: ZfkD Cancer Registry (Germany)|Data Dictionary: ZfkD Cancer Registry
availableVariable::cancer incidence
availableVariable::cancer prevalence
availableVariable::causes of death
availableVariable::cancer survival
availableVariable::number of deaths
availableVariable::diagnosis
availableVariable::age
availableVariable::sex
availableVariable::year
dataLevel::patient level
availableDataLevel::national level
numberRecords::unknown
dataStart::1999
dataEnd::onwards
hasCancerType::C00-C97: All cancer types
dataAvailability::partially publicly available
hasDownloadableData::XLS
hasDownloadableData::CSV
hasGrantRequirement::Data requires a grant proposal to be accessed
hasDataAccessInstructions::[https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Info_antrag/info_antrag_node.html click here to access
isDatabase
