Data Dictionary: Socialstyrelsen Cancer Registry

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Variable Name Definition
AGE Patient's age at diagnosis
YEAR Year of diagnosis
BEN* Indicator for malignant or benign tumour according to morphology. (See link to the regulation)
DBGRUND1 Basis for cause of death information. If clinical or forensic autopsy.
DIADATE Date when the diagnosis was established
DIADATEN Date when the diagnosis was established
DIGR* Type of examination underlying the diagnosis.
DEATHDATE Date when the patient died, information from the cause of death register
DEATHDATEN Date when the patient died, information from the cause of death register
EXNR Counter for breast cancer records in the registry, one line per reported breast cancer tumour.
FIGO Tumour spread at the time of diagnosis, gynecological tumours.
DOB Patient's date of birth
DOBN Patient's date of birth
HEMFR Patient's registered residence at the time of diagnosis, extrapolated to January 1 of the latest year
HEMFRF Error code for extrapolating the patient's registered residence
ICD7 Tumour location according to ICD-7, Codes for leukemias and lymphomas according to ICD-8 throughout the period (1958-).
ICD9 Tumour location according to ICD-9
ICDO10 Tumour location according to ICD-O/2 (with some elements of ICD-10)
ICDO3 Tumour location according to ICD-O/3
JNR Information retrieved from the A-form underlying hospital and diagnostic coding. It may be blank.
CLINIC The clinic where the patient's diagnosis was established
GENDER Patient's gender
LKF Patient's registered residence at the time of diagnosis
M Tumour spread at the time of diagnosis, distant metastases.
N Tumour spread at the time of diagnosis, lymph nodes.
OBD1 Tumour identified at autopsy
PAD Tumour's histopathological diagnosis according to C24.1.
PATH Diagnosing pathology and cytology department
SSN Patient's social security number
SSNQ Variable showing the quality of a social security number (SSN). The variable is created using the standard macro checkssn.
PREP Number of the histopathological specimen including year
REGION* Healthcare region
RTBDATUM
MOVDATE Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
SENUTV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
SIDE* Side indication for paired organs
HOSPITAL The healthcare institution where the diagnosis was established
SNOMED3 Tumour's morphological diagnosis according to ICD-O/3
SNOMEDO10 Tumour's morphological diagnosis according to ICD-O/2
T Tumour spread at the time of diagnosis, tumour size.
TIMEINV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
TIMEUTV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
TNMGRUND* Examination underlying TNM. Pathological is indicated if any of T, N, or M is based on morphological examination. Clinical is indicated when only clinical investigation is the basis and morphological examination is lacking.
TN Tumour number in chronological order, all reportable tumours. (If the patient has been diagnosed with multiple tumours)
TNMAL Tumour number in chronological order, only malignant tumours. (If the patient has been diagnosed with multiple tumours)
ULTCASE The disease/injury that initiated the chain of events that ultimately led to death.