Editing Database: Southern Regional Oncology Registry (ROR-Sul) (Portugal)

Go back to [[Portugal]] page
{{forresearchers}}

'''Type of database:''' [[databaseType::registry]].

'''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.

'''Sponsor, manager or home institution''': [[dataOwner::National Cancer Registry (RON)]] and [[dataOwner::Regional Oncology Registry South (ROR-Sul)]].

'''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::year]], [[hasVariable::sex]], [[hasVariable::place of residence]], [[hasVariable::region]], [[hasVariable::types of visits]], [[hasVariable::number of visits]], [[hasVariable::periodicity of physician consultation]], [[hasVariable::diagnosis]], [[hasVariable::primary tumor localization]], [[hasVariable::tumor staging]], [[hasVariable::risk of cancer]], [[hasVariable::tumor histology]], [[hasVariable::medical procedures]], [[hasVariable::causes of death]]. [[hasDataDictionary::Data Dictionary - Cancer Incidence, Survival and Mortality in the Southern Region of Portugal]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more].

'''Available type of information''':  Survival; Age; Year; Gender; Incidence rates; Tumor location; Mortality rates; Diagnosis; Histologic type; Primary location. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more].

'''Source of information''':  Data from public and private health institutions of the region.

'''Data level''': [[dataLevel::patient level]].

'''Available data level''': [[availableDataLevel::regional level]].

'''Number of records:''' [[numberRecords::unknown]].

'''Date range''': Regional level is presented from 2002 to [[dataEnd::2017]], and [[dataStart::1998]] - 2000/2001. The patient level date range is unknown.

'''Cancer areas of interest:''' [[hasCancerType::C00-C97: All cancer types]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more].

'''Data access''': [[dataAvailability::partially publicly available]]. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website, [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 click here to access]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access]]].

'''Contact information''': [https://www.dgs.pt/site/contactos.aspx Click here to access].