Editing Data Dictionary: Finnish Cancer Registry

Cancer Registry

{| class="wikitable"
! prefLabel !! technicalName !! description !! partOfGroup
|-
| Identification number || personnummer eller annat forskningsnummer || personal identification number or research number || Basic variables
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| Sex || sex || The sex of the patient || Basic variables
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| Date of diagnosis || dg_date || Date of cancer diagnosis || Basic variables
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| Age at diagnosis || dg_age || Age at the time of diagnosis, years rounded to one decimal place || Basic variables
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| The primary organ of the tumour || topo || Topographic code according to the ICD-O-3 classification || Basic variables
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| Cytological or histological diagnosis of the tumour || morpho || Morphological code according to the ICD-O-3 classification || Basic variables
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| Cancer malignancy || beh || Behavior code according to the ICD-O-3 classification || Basic variables
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| Cancer laterality || later || Cancer laterality || Basic variables
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| Basis of diagnosis || basis || The surest basis of diagnosis || Basic variables
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| Clinical spread of the tumour || stage || Finnish Cancer Registrys classification || Basic variables
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| Type of cancer || cancertype || The name of the cancer, Finnish Cancer Registrys classification || Basic variables
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| Date of exit from follow-up || ex_date || Cancer follow-up end date || Basic variables
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| Follow-up/survival status at registry close date || exit_status || Is the person alive, dead, or living abroad at the end of follow-up || Basic variables
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| Home municipality on the year of finding || dg_munic_staty || Home municipality for the person who fell ill with cancer in the year of the finding according to the municipal division for the statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data. || Basic variables
|-
| Hospital district on the year of finding || dg_hosp_staty || Hospital district of diagnosis based on municipality code from statistical year.  Will not be disclosed if the person has prohibited the disclosure of his/her data. || Basic variables
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| University hospital district of diagnosis || dg_uni_staty || University hospital district of diagnosis based on municipality code from statistical year.Will not be disclosed if the person has prohibited the disclosure of his/her data. || Basic variables
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| The date of birth || bi_date || Patient's birthday. The THL permit should mention the retrieval of the date of birth or social security number. || Permit specific variables
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| Follow-up/survival status at registry close date, unmodified || status_close || Alive, dead of this cancer, dead of causes other than this cancer, living abroad. A permit from Statistics Finland for cause of death data. || Permit specific variables
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| Pathology laboratory sample identifier || lab_sample_id || Laboratory-specific designation that identifies the sample. The THL permit should mention the pathology laboratory sample number. || Permit specific variables
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| Tumour grade || gradus || The degree of tumour differentiation (gradus) is recorded directly according to the reports. The degree is recorded primarily from the surgical specimen. The grade given for the preoperative needle sample/biopsy is always preliminary, and the grade for the surgical preparation always replaces the information for the previous needle sample. || Special variables
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| Spread category basis || met_def_type || TNM: TNM rating of the Cancer Registry clinical report within 4 months of diagnosis. May also be based on information provided in the pathology report in the case of a surgical specimen. Stage / Ann Arbor: A stage described in a cancer registry clinical report within 4 months of diagnosis if TNM data is missing. Verbal staging: The spread is described verbally in a clinical report within 4 months of detection if TNM and stage are missing. || Special variables
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| Spread category, tumour || met_tumor || See met_def_type, what information the variable includes || Special variables
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| Spread category, lymph node || met_lymph_node || See met_def_type, what information the variable includes || Special variables
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| Spread category, metastasis || met_metastases || See met_def_type, what information the variable includes || Special variables
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| Pathology laboratory organization identifier || org_name || Pathology laboratory organization identifier. Will not be disclosed if the person has prohibited the disclosure of his/her data. || Special variables
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| Diagnosis of pathology sample || pad, morpho_text, topo_text || Sample-specific, one cancer diagnosis may be associated with multiple pathological diagnoses. || Special variables
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| Multiple primary rank || multi || Multiple primary rank. Will be supplied upon request, definition to be agreed separately. || Special variables
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| Childhood cancer classification (ICCC3) || iccc3 || Intern. Class. of Childhood Cancer, 3rd ed. Will be disclosed if specifically requested. || Special variables
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| ICD-10 || iarccrtools_icd10 || ICD-10 code produced by the ICD-O-3 -> ICD-10 programme of IARC CRG Tools. Automatically generated ICD-10 classes may be illogical due to changes in registration practices. || Special variables
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| Municipality at exit from follow-up || ex_munic_staty || Home municipality for the person who fell ill with cancer in the year of the finding according to the municipal division for the statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data. || Special variables
|-
| Hospital district at exit from follow-up || ex_hosp_staty || Hospital district of diagnosis based on municipality code from statistical year.  Will not be disclosed if the person has prohibited the disclosure of his/her data. || Special variables
|-
| University hospital district at exit from follow-up || ex_uni_staty || University hospital district of diagnosis based on municipality code from statistical year.Will not be disclosed if the person has prohibited the disclosure of his/her data. || Special variables
|}