The Netherlands

Registries

Database: Netherlands Cancer Registry (NKR)

[1] [2]

Primary purpose: Registry and monitor cancer statistics around Netherlands.

Sponsor, manager or home institution: Comprehensive Cancer Center of the Netherlands (IKNL).

Available type of information:

• Incidence: Count, crude rate per 100,000 persons per year, European Standardized Rate (ESR) per 100,000 persons per year, World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, region, and year.
• Prevalence: 5 year, 10 year, and 20 year prevalence by type of cancer, gender, age, region, and year.
• Mortality: Count, crude rate per 100,000 persons per year, European Standardized Rate (ESR) per 100,000 persons per year, World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, and year.
• Survival: relative survival by type of cancer, Period from diagnosis (1 year and 10 years), age at time of diagnosis, stage at time of diagnosis (TNM), and gender.

Also, there is a cancer atlas that informs of the incidence of cancer in each region of the Netherlands in the period of 2011–2020 and compares it to the Dutch average. This information can be selected by type of cancer, region, and gender.

Type of information: The type of information available to each type of cancer at patient level can be seen in this website.

Source of information: Hospitals' reports.

Data level: Regional level (open access) and Patient level (restricted access).

Number of Records: Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumors of the central nervous system, borderline tumors of the ovary, and AL amyloidosis) in Netherlands.

Date range: Varies according to the diagnosis and the type of information. It can be checked in this website.

Cancer Areas of Interest: Regional data includes all invasive cancers except basal cell carcinoma of the skin.

Data access: Regional level data is available here. Access to patient level data can be requested by following the steps described here. The cancer atlas can be accessed here.

Information/contact for data request: Contact information.

Database: Mortality by Cause of Death

Primary purpose:

Sponsor, manager or home institution:

Type of information:

Source of information:

Data level:

Number of Records: Contains information regarding the whole territory of Lithuania.

Date range:

Cancer Areas of Interest: Totally malignant neoplasms of lip, mouth, and throat; of esophagus; of stomach; of large intestine; of rectum and anus; of liver and bile ducts; of gallbladder and bile ducts; of pancreas; of larynx; of trachea and lung; Skin melanoma; of breast; of cervix; of uterus; of ovary; of prostate; of kidney (except renal pelvis); of urinary bladder; of lymphatic and blood tissues; Other malignant neoplasms.

Data access:

Information/contact for data request: [ Contact information].