Database: National Registry of Childhood Cancer (RNCCR) (Romania): Difference between revisions

Revision as of 13:35, 29 November 2023

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Sponsor, manager or home institution: Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.

Primary purpose: To compile and maintain a comprehensive database of cancer cases in children and young people in Romania.

Type of information: The information contained in the registry follows the recommendations of ENCR [2]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [3]. Data refers to people aged between 0 and 14 years.

Available type of information: Available Data Dictionary - National Registry of Childhood Cancer (RNCCR). The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological/cytological examination: Behavior; Morphological code; Degree; Cod ICC3 primary; Cod ICC3 category; Cod ICC3 subcategory. Toronto staging: diagnostic class; level 1; level 2. TNM staging for solid tumors not included in Toronto staging: Stadium type; TNM classification. Treatment: Stadium type; TNM classification; Surgery date; Chemotherapy; Radiotherapy; Hormone therapy; Immunotherapy; Other treatments; Transplant; Diagnostic class; Therapeutic protocol; Another therapeutic protocol; Treatment abroad; Type of treatment abroad; Tara; end of therapy date; Response to treatment; Refusal; Reason for refusal; Abandon; Dropout reason). Tracking: Aate of last contact; Status; The last doctor; Death; The main cause; Secondary cause.

Source of information: Reports from pediatric oncologic centers.

Data level: patient level.

Date range: 2009 onwards.

Cancer areas of interest: unknown.

Data access: partially publicly available [4]. Instructions to request data for restricted content [5].

Contact information: Information [6].

@@ Line 8: / Line 8: @@
 '''Primary purpose:''' To compile and maintain a comprehensive database of cancer cases in children and young people in Romania.
-'''Type of information''': The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext]. Data refers to people aged between 0 and 14 years. The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological/cytological examination: Behavior; Morphological code; Degree; Cod ICC3 primary; Cod ICC3 category; Cod ICC3 subcategory. Toronto staging: diagnostic class; level 1; level 2. TNM staging for solid tumors not included in Toronto staging: Stadium type; TNM classification. Treatment: Stadium type; TNM classification; Surgery date; Chemotherapy; Radiotherapy; Hormone therapy; Immunotherapy; Other treatments; Transplant; Diagnostic class; Therapeutic protocol; Another therapeutic protocol; Treatment abroad; Type of treatment abroad; Tara; end of therapy date; Response to treatment; Refusal; Reason for refusal; Abandon; Dropout reason). Tracking: Aate of last contact; Status; The last doctor; Death; The main cause; Secondary cause.
+'''Type of information''': The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext]. Data refers to people aged between 0 and 14 years.
+'''Available type of information:''' [[Available Data Dictionary - National Registry of Childhood Cancer (RNCCR)]]. The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological/cytological examination: Behavior; Morphological code; Degree; Cod ICC3 primary; Cod ICC3 category; Cod ICC3 subcategory. Toronto staging: diagnostic class; level 1; level 2. TNM staging for solid tumors not included in Toronto staging: Stadium type; TNM classification. Treatment: Stadium type; TNM classification; Surgery date; Chemotherapy; Radiotherapy; Hormone therapy; Immunotherapy; Other treatments; Transplant; Diagnostic class; Therapeutic protocol; Another therapeutic protocol; Treatment abroad; Type of treatment abroad; Tara; end of therapy date; Response to treatment; Refusal; Reason for refusal; Abandon; Dropout reason). Tracking: Aate of last contact; Status; The last doctor; Death; The main cause; Secondary cause.
 '''Source of information''': Reports from pediatric oncologic centers.