Romania

Registries

Database: National Registry of Childhood Cancer (RNCCR)

[1]

Sponsor, manager or home institution: Romanian Society of Pediatric Onco-Hematology.

Type of information: The information contained in the registry follows the recommendations of ENCR, so the dataset can be checked in this document. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus, which is presented here. Data refers to people aged between 0 and 14 years.

The variables available to be registered by the hospitals in the database are: CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registry of the diagnosis - hospitalization, death, biopsy...), date of clinical onset, date of relapse, reason for reporting, registration base (data source), tumor location, topographical code, laterality.

Histopathological/cytological examination (behavior, morphological code, degree, cod ICC3 primary, cod ICC3 category, cod ICC3 subcategory).

Toronto staging (diagnostic class, level 1, level 2).

TNM staging for solid tumors not included in Toronto staging (stadium type, TNM classification).

Treatment (stadium type, tnm classificationsurgery date, chemotherapy, radiotherapy, hormone therapy, immunotherapy, other treatments, transplant, diagnostic class, therapeutic protocol, another therapeutic protocol, treatment abroad, type of treatment abroad, tara, end of therapy date, response to treatment, refusal, reason for refusal, abandon, dropout reason).

Tracking (date of last contact, status, the last doctor, death, the main cause, secondary cause).

Source of information: Regional Institutional Cancer Registries, pathology and cytology laboratories, oncology ambulatory service and oncology wards in hospitals, medical services belonging to ministries with their own health network (Ministry of National Defense and Ministry of Transportations and Telecommunications), and death certificates.

Data level: Patient-level (restricted access).

Date range: 2008 onwards.

Data access: To require access to the patient-level database, it is necessary to send and e-mail to the address presented in the database page. It is also possible to simulate the access and see the available variables and search layout by inserting the login informations presented in the home page of the database website.

Cancer areas of interest: The list can be checked here. Some specific cancer locations are excluded, and those can be seen here.

Information/contact for data request: Contact information.

Database: Mortality by cause of death

[2] [3]

Sponsor, manager or home institution: National Institute of Statistics (Institutul Naţional de Statistică).

Primary purpose: Registry for statistics purpose the number of deaths.

Type of information: Commune / city / municipality, county / sector, date, number of the document from the civil status register, code siruta, personal numeric code, name and surname, sex, number of children born alive during life (for women only), date of death, date of birth, marital status, date of birth of the surviving spouse, occupational status employee, level of education, citizenship, ethnicity, domicile, place of death, country where he died, country where he was born, causes of death (cause - includes neoplasms -, antecedent causes, the initial morbid state, and other important morbid conditions), manner of death (naturally, indeterminate, accident, suicide, homicide), status of autopsy.

Available type of information: POP206C - Deceased by causes of death, macro-regions, development regions and counties. POP206F - Deceased by gender and cause of death. POP206I - Deceased with usual residence in Romania by causes of death, macro-regions, development regions and counties. POP206L - Deceased with usual residence in Romania by sex and cause of death.

Source of Information: Death statistical bulletins made by the civil registry.

Data level: Patient-level.

Available data level: Regional and national-level.

Number of Records: Unknown.

Date Range: 1990 onwards.

Cancer Areas of Interest: Unknown.

Open data access: To find statistics about death, on the domain page of this website, located in the topic "A.2 VITAL STATISTICS" choose the option "DEATH", then choose the indicator you want to see.

Information/Contact for data request: Contact information.