Data dictionary - Netherlands Cancer Registry (NKR)

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Source: [1].

Patient records
Date of birth
Sex
Place/country of birth
Date of death
Patient number in the institution

Tumor data
Date of diagnosis
Basis for diagnosis
Topography
Morphology (WHO classification and FNCLCC grade)
TNM stage (clinical and post-surgical)
Additional tumor features (Behaviour, Localization, Size, Multifocality, Palpability)
Topography synchronous metastases
Molecular abnormalities in the tumor
Lymph nodes examination (Number and status)
Receptors status
Images for diagnosis
Degree of differentiation
Laboratory studies
Pathologic data biopsy

Treatment details
Surgical procedure (type, date of occurrence, date of discharge)
Lymph node dissection (type, date of occurrence, date of discharge)
Reconstructive surgery (type, date of occurrence, date of discharge)
Radiotherapy (type, start date, stop date, dosage)
Chemotherapy (type, start date, stop date, scheme)
Hormonal therapy (type, start date, stop date)
Target therapy (type, start date, stop date)
Immunotherapy (type, start date, stop date)
Complication during/after treatments (type, reintervention)
Metastasectomy (yes/no)
Reason for not performing an specific treatment
Resection margins
Other treatments (type, start date, stop date)

Follow-up data
Recurrence within 5 years of diagnosis
Relapses within 10 years of diagnosis
Follow up type (Local/regional recurrence)
Date of follow up
Basis for diagnosis of follow up
Pathological tumor size on follow up
Localization of follow-up recurrence
Lymph node follow-up examination (number examined, status)
Metastasis follow-up (number, type, basis for diagnosis, topography)
Treatment follow-up (type and date)
Progression (date, method of determination)
Lab results/Receptors status related to recurrence/metastasis